Newsletters

…The Clot Trot: Mike Beamesderfer’s Story An Opportunity to …

Take Advantage of the Support Available: Tammillia’s Story

…I have answers. I’m currently awaiting blood test results to find out if I have lupus anticoagulant / antiphospholipid syndrome. I feel like my youth and confidence have been taken…

Patient Input Needed for New Study Involving APS

…persons with antiphospholipid syndrome. The team …

Volunteer Spotlight: Megan and Doug Sloyer

About 12 years ago, Megan was diagnosed with a pulmonary embolism (PE) and two clotting disorders – factor V Leiden (FVL) and antiphospholipid syndrome (APS). Since then, she has experienced…

June e-Newsletter | Summer Months, Summer Fun

…add blood clot prevention to the list of things to do before …

Another Chance at Life: Rachael’s Story

…were no known risk factors that contributed to them. Additional testing disclosed the reason for the clots. I was diagnosed with an autoimmune clotting disorder called antiphospholipid syndrome, or APS,…

I Thought I Had a Blood Clot, But No One Listened: Cherree’s Story

…all gave up, a brand new doctor came in while I was having dialysis, picked up my chart and knew what was wrong. My diagnosis is catastrophic antiphospholipid syndrome, which…

Checklists of Questions Prior to INR Self-Testing

…producing blood from a vein draw. Self-Testing May Not Be a Good …

I Am My Own Best Healthcare Advocate: Michael’s Story

…They took some blood for a D-Dimer test, and diagnosed me with Post-Thrombotic Syndrome. I was told not to worry and that I could do normal activities over the weekend,…

Athlete-Specific Challenges and Questions About Blood Clots

…over weeks and months. Some residual symptoms may persist …