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New Patient Resource Guide

Last updated May 21, 2024

If you have been diagnosed with a blood clot, you know that this is a life-changing experience and can be upsetting and confusing. You may be asking yourself: What is a blood clot? How did this happen to me? Will I be okay? Will my life ever be the same? These are important questions that deserve to be answered. The National Blood Clot Alliance (NBCA) developed this guide for newly diagnosed patients and their caregivers to help answer common questions and provide the resources to help you navigate life, post-diagnosis. Blood clots can be deadly, but you are a survivor.

What is in the New Patient Resource Guide?

What is a Blood Clot?
Blood Clotting Disorders (Thrombophilia)
Genetic Testing for Thrombophilia
Blood Clot Recovery Timeline
Medical Team
Blood Clot Treatment
INR Testing
How to Prevent a Recurrence
Blood Clot Complications
Healthy Lifestyle
Questions to Ask Your Doctor
FAQs
NBCA Resources

New Patient Resource Guide

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New Patient Resource Guide (Spanish)

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Order Copies for Your Clinic!

*Hard copies are only currently available in English.

If you are a healthcare provider or part of a hospital or organization who sees VTE patients, get hard copies of our New Patient Guide for your clinic at no charge – just pay shipping. Blood clot patients receive little to no information after a diagnosis in the hospital – you can help change that! It’s easy:

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NBCA Additional Resources

NBCA is here for you. If you have any questions, please do not hesitate to send an email to info@stoptheclot.org. You can also connect with NBCA on Facebook, Twitter, Instagram, and LinkedIn. Join our NBCA Facebook support group or register for our monthly virtual patient support group, PEP Talk: Patients Educating Patients to learn how.

Website Resources

Thrombophilia
Blood Clot Treatment
INR Testing
Questions to Ask Your Doctor After a Blood Clot

Help Us Improve Our Patient Resources!

This new patient guide does not replace medical advice. Please consult your physician should you have any medical questions.

Questions? Email: info@stoptheclot.org

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We’re honored to spotlight Arshell Brooks‑Harr $We’re honored to spotlight Arshell Brooks‑Harris, NBCA’s dedicated Board Secretary, and her husband Andre Harris, whose tireless support has strengthened our mission in countless ways. Based in New York City, Arshell became involved with NBCA after her eldest daughter, Leschel, died of a pulmonary embolism in 2020 following a fractured ankle. Since then, Arshell and Andre have become a powerhouse duo in the fight against blood clots. They both serve as NBCA Thrombassadors, engaging directly with their local community to share Leschel’s story and educate others about clot risks and symptoms. Their work goes far beyond their local community, though. For example, in March, they took part in NBCA’s advocacy efforts on Capitol Hill and met with Congressional offices about increasing funding for blood clot awareness and education. The following day, they started a month-long, 1,650-mile trip bringing life-saving information about blood clots to predominantly Black communities across the Southern U.S. Now, Arshell and Andre are preparing for their annual summer barbecue and awareness event in memory of Leschel. “Before Leschel’s passing, I didn’t know a PE could be fatal,” Arshell says. “Now, every event, every connection, is to honor her legacy and protect others.” Thank you, Arshell and Andre, for your heartfelt dedication and advocacy.$

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