Patient Stories
I Was Told I Was Too Young for Blood Clots: Audrey’s Story
At 20 years old, I was healthy, fit, active, and recovering from an ACL tear from a year and a half prior. When I finally went in for reconstructive surgery on June 19, 2020, it was at the height of the COVID-19 pandemic, already a very stressful time. I was aware that I had a…
My Neighbor Found Me and Performed CPR: Jessica’s Story
My husband and I are both ultra runners. On June 27 of this year, we were both going for an early morning training run with him starting about five minutes behind me. I had been experiencing shortness of breath for a few weeks before this run. Little things, such as bringing groceries in from the…
I Live With the Pain of Taking Deep Breaths: Celeste’s Story
In April 2020, I had been feeling sick and brushed it off as allergies. Due to COVID, I had a telehealth visit and was diagnosed with bronchitis. After four months of a lingering cough, I started to have a hard time breathing while doing the most menial things. Standing became so trying. I finally went…
I Went in Circles for Years Trying to Get Answers: Cassandra’s Story
I had my first deep vein thrombosis and pulmonary embolism at 18 years old due to May-Thurner Syndrome. My symptoms were left lower abdomen pain and fainting. I was told multiple times it was a miracle I was alive due to the clot burden. I spent 12 days in the hospital and had a temporary…
I Thought I’d Pulled a Muscle: Madi’s Story
I remember going for a walk with my 10-month-old daughter the day I first felt the pain. I thought I’d pulled a muscle in my shoulder while pushing a heavy pram up a steep hill. Over a few days, the dull, sharp pain became worse. It felt like it was wrapping around my shoulder and…
Recovery is Not Linear: Desiree’s Story
In April 2021, I was diagnosed with a cerebral venous sinus thrombosis. I was fortunate enough to have been diagnosed quickly following three days of headache, nausea, and vomiting. My risk factor was estrogen based oral contraceptives. This diagnosis has taken a physical and emotional toll, but I am thankful for where I am. I…
Two Blood Clots 10 Years Apart: Priyansh’s Story
I was diagnosed with a pulmonary embolism in 2013 as a side effect of steroids I was taking for nephrotic syndrome, a kidney disorder. I was on warfarin for two years until my doctor advised me to stop taking it. In March 2023, I had sudden pain in my left leg that was the worst…
The Doctor Didn’t Think I Would Live: Tabitha’s Story
It was one of the most exciting times! After six long weeks of wearing an air cast, I had just received news that I could get it removed. I told the doctor that my leg had been cramping, but he said it should subside once the cast was off and I moved around. Later that…
I Had No Idea That the Pain in my Knee Was a Warning Sign: Mark’s Story
About a week after having an arthroscopy on my left knee, I was icing the top of the knee and commented to my wife that I really should be icing the back of my knee. What I did not know at the time was that the back of the knee hurt because I was passing…
Blood Clots in the Arm are Rare, But I Had One: Kiersten’s Story
About 15 years ago, my dad had a blood clot in his leg (deep vein thrombosis) and testing showed he had factor V Leiden. Since it’s a genetic disorder, my two sisters and I got tested. I tested positive for factor V Leiden as well as one of my sisters and one did not. So,…