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Patient Stories

I Had to Figure Everything Out on My Own: Sue’s Story

In the spring of 2018, I began having severe shortness of breath. I’m an asthmatic and was using a rescue inhaler constantly, but it didn’t help much. After about six weeks of complaining to my healthcare providers, they did a chest x-ray that was normal. Two weeks later, I was back in the office with…

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I Have Alarms Reminding Me to Take My Medication Twice Daily: Sherri’s Story

I am a wife and mother of four girls. I began having complications with my fallopian tubes and painful menstrual cycles. I had both fallopian tubes removed, one in 2020 and the other after I had baby #4  in 2021. I ended up having a hysterectomy in February 2023. About a week after having the…

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My Symptoms Felt Like Indigestion: Amy’s Story

In March 2016, I had only been on estrogen-based birth control for a few months and decided to take a four-hour road trip with some friends. A few days after, I started to feel like I had heartburn. At first, my symptoms felt a lot like indigestion — pressure in the chest, but not painful.…

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I Spent 18 Months on Supplemental Oxygen: Maresa’s Story

I had been having what I considered typical cold symptoms for about a month. Ongoing negative COVID tests gave little clarity. The doctors initially diagnosed me with a sinus infection then and pneumonia when the symptoms didn’t subside. I woke up Valentines Day 2022 with total numbness on my right side. I could not make…

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The Doctor Wanted to Send Me Home: Catalina’s Story

My heart was beating unusually and I felt tired; it was a long day. After family holidays and an accident on the road, we were trapped for several hours in the car. When I arrived at my destination, my heart still racing. I felt it in my neck. My heart rate was between 160-180. As…

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Being Diagnosed with a PE was a Traumatic Experience: Lauren’s Story

In early April 2023, I underwent a complete hysterectomy. My recovery was complicated by uncontrolled pain and urinary retention, which required a Foley catheter for a week. I then started experiencing a UTI, which required hospitalization. I was finally improving by the end of April, but on May 5, 2023, I suddenly started to experience…

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Educate Yourself on the Signs and Symptoms of Blood Clots: Peggy’s Story

As told by her daughter Pellayia My mother passed away June 22, 1998 of a pulmonary embolism. It was sudden. I left for university that morning and got a call in between classes that I needed to come home right away. I told my cousin that I had a quiz and couldn’t. He kept insisting.…

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Having So Many Blood Clots at a Young Age is Terrifying: Shannon’s Story

I was 20 years old and on the contraceptive pill when I had my first DVT very suddenly. I woke up with a swollen, painful leg and couldn’t walk properly. I was diagnosed with factor V Leiden (heterozygous) and put on blood thinners. After having my son at 23 years old, I developed two DVTs,…

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VTOS is a Medical Emergency: Elise’s Story

On October 24, 2023, my 13-year-old daughter Elise’s arm began to swell and change color during swim practice. Elise has been a competitive swimmer since she was five years old and being at practice was a routine part of her day for many, many years. Her coaches did not know what was wrong with her…

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I Knew Nothing About Blood Clots: Shawna’s Story

During Covid, I was teaching from home and not as active as I once was. I began feeling short of breath at the start of the week, but attributed it to the bad air quality from fires in the area. On Thursday evening, I began feeling a pain in the right side of my back…

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