Patient Stories

My Lifelong Experience with FVL: Gemma’s Story

I was diagnosed with the genetic clotting disorder factor V Leiden, or FVL, when I was 15 years old.  My aunty (my dad’s sister) had a blood clot during pregnancy and she learned she had FVL, which led to members of my family, including me, being tested for it too. While growing up, FVL never…

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Two Blood Clots, Twenty Years Apart: Tim’s Story

My name is Tim. I was born, raised, and still live in Salem, Arkansas. Salem is a small town with many people raising cattle. My Dad always had a few heads of cattle and, growing up, I would get on calves trying to ride them. I grew older and started getting on young bulls until…

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Blood Clots Do Not Discriminate: Heather’s Story

Can you be too young to experience blood clots? At 22 years old, I wasn’t, and neither are you! I have heard “you are too young” at every medical provider’s office, but blood clots do not discriminate. Trust me, because I’m a two-time survivor of pulmonary embolisms, also known as PEs or blood clots in…

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Be Aware and Care: Amy’s Story, as Told by her Husband Frank

My Name is Frank. Until recently, I had no idea what a pulmonary embolism (PE) was. I quickly found out, though, on July 1st, 2020, when one tragically claimed the life of my wife Amy. Amy and I were together since 2001, and we were married in 2004. We have five beautiful children together. Most…

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The Spark for Advocacy: Michele’s Story

My name is Michele. I am a healthcare worker, mother, and recent survivor of venous thromboembolism (blood clots in the veins). I am sharing my story to raise awareness, both on a general level as well as from the perspective of a healthcare worker. In January of 2020, I underwent an elective ankle surgery. At…

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Trust Your Instincts: Anna’s Story

My story begins in February of this year when I felt a sharp, intense pain in my ribs. Assuming it was a pulled muscle from a workout the day before, I didn’t think anything of it. But by 4:00 in the morning, the pain woke me up. I called the non-emergency services here in the…

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Know Your Risk, Know the Signs: Amber’s Story

My name is Amber, and I am the mother of two children, a runner, and a nursing assistant. I lead a fairly active lifestyle. In August of 2019, I started birth control. I had previously been on birth control for several years before having my children, so I thought nothing of it when my doctor…

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Better Safe than Sorry: Gina’s Story

My name is Gina and I am a 32-year-old mom of three children. On March 23, 2020, I gave birth to my third child. My husband and I had made the decision he would be our last, so I signed the consent forms for a tubal ligation several months prior. March was the height of…

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Trusting My Body When It Was in Trouble: Katie’s Story

In December 2016, my life felt as full as it could get. I had six kids ranging in age from just older than 1 year old to 12 years old, a busy freelance writing career, and involvement in various community organizations, including a parent advocacy group I had helped form a year before. Yet, my…

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Put Your Health First: Layla’s Story

My name is Layla, and I was a 22-year-old law school student at the time of my blood clot, and I also was working as a nanny for a wonderful family. I had been a cheerleader in middle and high school, and even though I didn’t continue going into college, I was still very active,…

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