Patient Stories

Bailey’s Story – Not Just a One Time Thing

In September of 2020 at the age of 21, I was pregnant with my son during what appeared to be a perfectly normal and healthy pregnancy. Thankfully, I delivered a healthy baby boy. But just two days later I began experiencing significant swelling in my left leg. I knew it was normal for pregnant women…

Read the full story

This Was Not About Getting Older – Joyce’s Story

In July of 2019 I began experiencing shortness of breath on a regular basis, even if I was simply walking from the kitchen to the living room… I thought it was just a sign of aging since I was 67 years old at the time. However, it progressed to the point that one day I…

Read the full story

A Near Death Experience – Allyson’s Story

I am 18 years old and during November of 2020 I contracted COVID-19. A few short months later I started having pain in my leg and I found it difficult to breathe. My mom took me to the doctor and they told me it was just anxiety… but three days later I convinced my mom…

Read the full story

An Overdue Diagnosis: Alysa’s Story

In February of 2021, at 28 years old, I was diagnosed with a five and a half inch blood clot in my left vena cava. I was admitted to the hospital and the images revealed that the clot had been present and developing for more than a year and a half! I also underwent knee…

Read the full story

Know Your Family Health History! – Kelly’s Story

The morning of November 14, 2019 I fell in my bathroom and hit my head on the bathtub. I was unconscious, lying in a pool of blood until I finally gained some life and crawled to call 911. When the medics arrived, I was barely able to breathe and was rushed to the hospital. I…

Read the full story

Knowledge is Power: Sheila’s Story

On September 5, 2021 I woke up in the middle of the night with a cramping pain in my right leg, which didn’t seem like anything serious at the time. I woke up the next morning and carried out my usual routine, but the pain became unbearable so I decided to see a doctor. The…

Read the full story

My Commitment to CTEPH Awareness: Harry’s Story

The Road to Diagnosis As far back as my teenage years, I had experienced chronic shortness of breath. This worsened in my twenties and thirties as new symptoms emerged, including occasional chest and arm pains and general exhaustion. Over the years I sought the opinions of countless doctors, leading to misdiagnosis after misdiagnosis, …

Read the full story

If you believe you CAN, you WILL: John’s Story

In the fall of 2020, a near fatal bilateral pulmonary embolism came from nowhere, cause unknown. As a 14-time marathoner and in the best shape of my life, this came as a complete shock. Following my diagnosis, I was put on blood thinners. As an athlete, adjusting to the blood thinners was a challenge. I…

Read the full story

Blood Clots Know No Age: Sowebah’s Story

Six months ago, at 31-years-old, I suffered a DVT. Blood clots know no age. On March 3, 2021 I woke up and had a pain in my left leg and knew something was wrong. I visited a doctor who sent me for an ultrasound, which revealed a massive DVT (deep vein thrombosis) spanning my entire…

Read the full story

Know Your Blood Clot Risk Factors: Nicole’s Story

In May of 2021, I dislocated my ankle. I was also on hormonal birth control. After the ankle injury, I was told to go home and rest, and not to bear weight on my ankle for 4-6 weeks. After about a week and a half, I had intense pain and cramping in the calf of…

Read the full story