Patient Stories

Blood Clots in My Lung Almost Ended My Life: Deanne’s Story

On the morning of October 23, 2015, I collapsed at home after suffering from massive bi-lateral pulmonary embolisms, or blood clots in my lungs. I had knee replacement surgery five weeks earlier. I was not prescribed blood thinners after my surgery, but my doctor instructed me to take aspirin, which I did. It was a…

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Take Control and Take Steps to Prevent Blood Clots: Ashley’s Story

My name is Ashley, and I was diagnosed with factor V Leiden, protein S deficiency, and protein C deficiency in March 2017. I was a waitress at the time, and I had just torn my shoulder due to a weight lifting accident. So, I started running outside a lot to stay active before I had…

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My Life with May-Thurner Syndrome: Kelly’s Story

I can still remember sitting alone in the emergency room sending funny selfies to my Mom. Why not? I lived in Pennsylvania and she was in North Dakota, and, of course, she was worried. I, on the other hand, was annoyed. Everything started with terrible lower left back pain that eventually moved to my left…

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If Something Doesn’t Feel Right, Get it Checked: Tanya’s Story

In 2005, I had severe uterine bleeding which lasted for 10 months. As a result, I was forced to have an emergency hysterectomy. In an effort to try to stop the bleeding, I was encouraged to take high doses of estrogen-based birth control pills. Two days before my surgery, I was also given two shots of estrogen-based…

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Staying Positive Through My Experience with CVST: Maddie’s Story

Maddie first learned about blood clots from reading the warning label on her estrogen-based birth control prescription, but she never thought one would happen to her, especially in her brain. Read about her CVST diagnosis and recovery, and find out how she chooses to stay positive.

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The Day that Changed My Life: Kimberly’s Story

Kimberly experienced ongoing chest pain, a racing heart, and shortness of breath, which she thought were most certainly due to a heart attack. She sought help from the emergency room on multiple occasions and was told she was experiencing anxiety, but she knew something was wrong. It wasn’t until she went to a different hospital that doctors …

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Gaining Understanding After My Blood Clot: Sarah’s Story

Sarah was a full-time college student when doctors discovered a blood clot in her abdomen that blocked almost all of her collateral veins and produced swelling and pain in her leg. They thought the clot was covering her inferior vena cava, but after she had surgery to remove the clot, they realized her inferior vena cava was completely …

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My Strained Muscle was a Blood Clot: Cristal’s Story

I am a female, in my mid-twenties, and I am very active. I experienced calf pain for about two weeks, which I attributed to a strain from uphill running, and other cardiovascular and weight lifting workouts. Towards the end of two weeks, the pain in my …

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Finally Myself Again: Katie’s Story

The personal story below is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to…

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The Right Treatment Changed My Life: Jan’s Story

In June 2011, 16 weeks after giving birth to my first child, I started having symptoms of back pain. As a  23-year-old new mother, I diagnosed myself with all sorts of things. I decided that the pain I was experiencing must be my kidneys reacting to alcohol after such a long time without any, and…

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