Patient Stories

The Other Side of the Hospital Bed: Sarah’s Story

I am a Registered Nurse, or RN, but that didn’t help me spot my issue. I was working a shift, and I felt very run down and tired. I thought maybe I was catching the flu. My left leg felt kind of tingly like my foot was asleep, and I had some pain in my…

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This Can’t Be Happening: Tom’s Story

On December 31, 2014, I went to a dinner party at a friend’s house for New Year’s Eve. I was uncomfortable the whole time. Simply put, my calf ached. I remember thinking, “That’s odd, I haven’t exercised in days, so why does my calf hurt so much?” I struggled to sleep that night and spent the next…

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Knowledge of Blood Clot Risks and Symptoms Saved Me: Bella’s Story

I was sitting outside enjoying the fresh air when my FitBit said my heart rate was up to 100. I just had surgery to put in a plate and screws for a broken tibia (shinbone). My mom was concerned that she saw signs of a blood clot in my leg. When she touched my leg,…

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My Constant Headache Was a Sign of Something Serious: Marjorie’s Story

Eight years ago, when I was 23 years old, I suffered a deep vein thrombosis (DVT), or blood clot in my leg. My doctors put me on heparin and warfarin for six months, and I was instructed to stop hormonal birth control. I figured since I stopped estrogen-based birth control, I would be fine, even…

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Don’t Stop Until There is an Answer: Becca’s Story

At 19 years old, I never knew how much blood clots could affect my life. I worked at a daycare center all summer and, as a result, I was active every day chasing and playing with kids. One day, I woke up with severe back pain. I brushed it off at first, and blamed the…

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How A Drawing Saved My Life: Lori’s Story

In August 2014, I was overwhelmed with joy after delivering my baby boy, Jack. He was perfect, the delivery was pretty easy, and I was ready to go home. During a brief moment of quiet during his nap, I perused through the endless literature provided by the hospital. A hand drawing of a leg, with…

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Lucky to be Alive: Courtney’s Story

I started estrogen-based birth control in December 2018. I had a cramp in my calf, and two days later it was dismissed as nothing by my gynecologist. I stayed on birth control and what were actually clots in my right leg grew. I would later learn that the blood clots extended from my knee to…

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Kierra in the hospital

Here for a Purpose: Kierra’s Story

On Thursday, December 20, 2018, I was 19 years old, and one day away from finishing my first semester of college. As I opened my eyes that day, I was having excruciating pain on the left side of my lower back. I had been dealing with lower back and hip pain since July 2018, and…

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Birth Control Caused a Blood Clot in My Lung: Lucy’s Story

My name is Lucy, and I am 22 years old. I had DVT (deep vein thrombosis or blood clot in the leg) and PEs (pulmonary embolism or blood clots in the lung) due to estrogen-based contraception. I am sharing my story to raise awareness about the risks of estrogen-based birth control in women of my…

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Cancer is a Risk Factor for Blood Clots: In Memory of Jon Charles Shain, as Told by His Wife Kathy

I am writing this story in memory of my husband, Jon Charles Shain, who passed away due to blood clots on January 26, 2019. Jon’s risk for getting a blood clot was high, but unfortunately, he did not realize it. Jon was being treated for prostate cancer for several years. Cancer is a risk factor…

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