Patient Stories

Birth Control for Fertility Treatments Caused My Stroke and CVST: Antonella’s Story

December 21, 2017, started off just like any other day. I woke up early, worked out, and then got ready for work. I had a headache for two days prior. I was taking over-the-counter pain medication, but my headache was not so bad that it stopped me from my normal routine. While I was at…

Read the full story

My Experience with a Blood Clot on My Brain: Amy’s Story

I’m a 25-year-old woman who doesn’t smoke, drink very often, or use any kind of drugs. I take care of myself, and I try to keep active. Over the past year, I have been in and out of the doctor’s office with a lump on my face. The lump was getting bigger, which was concerning…

Read the full story

Listen to Your Body and Trust Your Doctor: Dana’s Story

On the way to my 37th birthday celebration, I suffered a pulmonary embolism, or blood clot in my lung, but I chose to ignore the symptoms. As a dancer, marathoner, mountain biker, and hiker, it did not even cross my mind that something serious was happening to my body, so I ignored every symptom I…

Read the full story

Steve’s Story, As Told by his Loving Wife

My husband, Steve Brenner, died of a massive pulmonary embolism (PE) or blood clot in his lung, at the age of 53, on August 15, 2016, just days before he was scheduled for hip replacement surgery. This was preventable. If Steve’s doctor or one of his colleagues at their orthopedic practice had replaced Steve’s hip…

Read the full story

A Career Ballerina Battles PE: Tiffany’s Story

My name is Tiffany, and I am a career ballerina dealing with the high risk of bilateral pulmonary emboli, or blood clots in my lungs. My professional dance career was side tracked as I sought treatment. It was March 15, 2017, and my senior year, when I was performing a ballet solo in George Balanchine’s…

Read the full story

Blood Clots in My Lung Almost Ended My Life: Deanne’s Story

On the morning of October 23, 2015, I collapsed at home after suffering from massive bi-lateral pulmonary embolisms, or blood clots in my lungs. I had knee replacement surgery five weeks earlier. I was not prescribed blood thinners after my surgery, but my doctor instructed me to take aspirin, which I did. It was a…

Read the full story

Take Control and Take Steps to Prevent Blood Clots: Ashley’s Story

My name is Ashley, and I was diagnosed with factor V Leiden, protein S deficiency, and protein C deficiency in March 2017. I was a waitress at the time, and I had just torn my shoulder due to a weight lifting accident. So, I started running outside a lot to stay active before I had…

Read the full story

My Life with May-Thurner Syndrome: Kelly’s Story

I can still remember sitting alone in the emergency room sending funny selfies to my Mom. Why not? I lived in Pennsylvania and she was in North Dakota, and, of course, she was worried. I, on the other hand, was annoyed. Everything started with terrible lower left back pain that eventually moved to my left…

Read the full story

If Something Doesn’t Feel Right, Get it Checked: Tanya’s Story

In 2005, I had severe uterine bleeding which lasted for 10 months. As a result, I was forced to have an emergency hysterectomy. In an effort to try to stop the bleeding, I was encouraged to take high doses of estrogen-based birth control pills. Two days before my surgery, I was also given two shots of estrogen-based…

Read the full story

Staying Positive Through My Experience with CVST: Maddie’s Story

Maddie first learned about blood clots from reading the warning label on her estrogen-based birth control prescription, but she never thought one would happen to her, especially in her brain. Read about her CVST diagnosis and recovery, and find out how she chooses to stay positive.

Read the full story
Join the conversation
Share to Stop the Clot