Factor II
Life is a Gift and it’s Fragile: Cara’s Story
I was in my early 30s and enjoying life as a new mom, but I had been having a rough time for nine weeks, experiencing severe headaches and aphasia. I was worked up by a neurologist thoroughly and had all kinds of tests and scans — an MRI, MRA, an EEG — and everything was…
Listen to Your Intuition, Manage Fear, and Advocate For Yourself: Julie’s Story
In October 2023, I had just returned from a Florida vacation. The following day, I woke up with a subtle ache in my left calf. When I shared with my husband, he casually said, “Do you have a blood clot?” But after years of international flights with no issues, it was easy to attribute the…
Blood Clots Kicked Me When I Was Already Down: James’ Story
I woke up one morning in the summer of 2011 with nausea and pain in the left side of my torso/abdomen. At first, I wrote it off as a stomach bug and called in sick at work. After a couple of days, I was feeling worse so went to an urgent care clinic. The doctor…
If I Had Waited One More Day, I Wouldn’t Be Here: Heather’s Story
Last March, I had turned 35 exactly a week before my traumatic discovery. I had a terrible, terrible, headache. I knew that after a few days of having this head pain, something wasn’t right. I was flown out of my local emergency room to a stroke center, where I was told I had two brain…
The ER Doctor Immediately Assumed I Was Having a Panic Attack: Amy’s Story
One day I was hanging clothes on our clothesline outside. I bent down and suddenly felt really short of breath. After that, I was fine, but then experienced it again when walking or doing anything strenuous. Living in the South, I thought it must be seasonal allergies, but it continued to worsen. When I took…
I Had Risk Factors I Didn’t Even Realize: Carley’s Story
During my senior year at Clarion University of Pennsylvania, I started getting sick. For about two months, my heart rate would randomly start going really high for no reason. I would wake up in the middle of the night and it would be at 160 beats per minute. I went to the doctor, and they…
I Got Extremely Lucky: Kelly’s Story
On Halloween 2021, I noticed that my thigh was sore and I was out of breath. I figured it was just a pulled muscle and allergies or a cold coming on. Walking into work the next morning, I was so out of breath that I fainted. I had fainted in the past, so I just…
It Took Me Weeks to Come to Terms With My Diagnosis: Sharon’s Story
I started to feel pain under my left shoulder blade and thought I had pulled a muscle. I iced it and it started to feel better. But the next day, I woke up feeling worse. The pain had expanded around my rib cage on both sides, making it challenging to breathe. I went to work…
The Hematologist Told Me to Buy a Lottery Ticket For How Lucky I’d Been: McKenna’s Story
In the summer of 2021, I started to experience extreme back pain. At times, I was unable to sit down or move at all. Being an active 20-year-old who grew up playing sports, I attributed my pain to a tweak that I just needed to stretch out. But the pain continued getting worse, and my…
The Medical Profession has a Long Way to Go: Joel’s Story
I’ve always been an active person, regularly hiking 40 miles a week. When I had extreme calf pain in 2011 at 54 years old, I went to ER and was diagnosed with an unprovoked deep vein thrombosis (DVT) and was prescribed warfarin for six months. They did not know what caused the DVT and did…
