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Factor V Leiden

Factor V Leiden Runs In My Family: Abby’s Story

When I was a child, my brother and I were tested for factor V Leiden after my father had a clot that traveled to his lungs (PE) and was diagnosed with the factor V disorder. The test came back normal for both me and my brother. About 10 years later, I was 22, working my…

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They Couldn’t Figure Out What Was Wrong: Shantelle’s Story

When I was 20, I had some pain in my leg. I chalked it up to a pulled muscle. In the next few days, it seemed to get worse. My mom convinced me to go to the hospital, but they told me I was constipated and sent me home. The pain continued to get worse…

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The PCP Who Dismissed My Concerns Was Dismissed By Me: Kay’s Story

After having provoked blood clots from hip surgery (the symptoms I experienced included leg pain, shortness of breath, and chest pain) I asked my primary care physician if she would order bloodwork to determine if I have a clotting disorder. I was detailing my family members with similar issues: my mother had an unprovoked pulmonary…

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I Was Overcome With Intense, Debilitating Chest Pain: Nina’s Story

I had been feeling unwell for several weeks. I had swelling and pain in my legs and other random symptoms. I had bought almost every leg cream in an attempt to get some sleep at night. All that was pushed aside when my daughter went into labor unexpectedly just a few days before my husband…

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I Almost Left the ER: Lucy’s Story

In October 2020 at age 28, I woke up at 5 a.m. with back pain. It felt like I pulled a muscle. Throughout the day, the pain got worse. It hurt to sit or lie down. By the next morning, I was vomiting from pain and decided to drive myself to the emergency room. The…

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My Symptoms Felt Like Indigestion: Amy’s Story

In March 2016, I had only been on estrogen-based birth control for a few months and decided to take a four-hour road trip with some friends. A few days after, I started to feel like I had heartburn. At first, my symptoms felt a lot like indigestion — pressure in the chest, but not painful.…

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I Begged Them to Look at my Lungs for Clots: Renee’s Story

I had two episodes where I was walking through my house and felt something in my chest. I felt clammy like I was about to pass out. After the second episode in March 2020, I went to the doctor I told her I thought I had blood clots. I felt something dragging through my chest…

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I Was Diagnosed with Factor V Leiden When It Was New: Lisa’s Story

In March 1989, I was a sophomore in college and on spring break in Florida when my left calf became extremely swollen and I could barely walk. I also had severe pain in between my shoulders and had shortness of breath. A friend took me to the ER, where I stayed for almost two weeks.…

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He Passed Away on the Way to the Hospital: Brian’s Story

As told by his wife, Allison In January 2017, my husband Brian and I had been married for one year, and I had just given birth to our son seven weeks earlier. Brian started mentioning that he had bad calf pain. For a man that never complained, this was odd, but I didn’t know to…

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It’s Important to Listen to Your Body: Dan’s Story

On Valentine’s Day 2013, I woke up with what I thought was a stomach virus. A few hours later, I was in the ER with a diverticulitis attack that split open my intestine and spent 10 days in the hospital. A few months later, I had another diverticulitis attack, but I caught it early and…

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