Factor V Leiden

In April 2020, at the peak of COVID, I started experiencing pain in my lower back. During a walk with friends, a sharp pain would shoot down my right leg with every step. I tried to ignore the pain and continued the walk. Later that evening, my leg started to swell, and the pain got…

I was three weeks away from turning 18 and I was working in checkout in a supermarket when I got what felt like a cramp in my left calf. My family told me to try drinking salt water, but after three days, I woke up with my left leg doubled in size, looking purple, and…

In August 1993, I was 25 years old and three months from my wedding day. I realized that I would probably be menstruating on my wedding day and honeymoon. As I suffered from terrible cramps, I was upset. My aunt, a nurse, suggested I see a gynecologist, mentioning that if I start the birth control…

I fully tore my ACL and partially tore my MCL and meniscus in March of 2024 playing volleyball. I first started developing blood clots in mid-April 2024 before my knee surgery. I started feeling nauseas, but ignored it, thinking it was from my menstrual cycle. The signs started coming one after the other: purple discoloration…

When I gave birth to my son, I was so excited to be a parent. But I began having headaches that were not normal. In the hospital, I was given medication to clot my blood because of slightly more than average blood loss. I was also given extra blood pressure checks because my blood pressure…

I am a healthy 23-year-old woman and had never experienced any real health concerns. I walk the same route every morning to work, but on this particular morning, I was out of breath almost instantly. When I sat at my desk, I was still unable to catch my breath. It felt like the air was…

I had my first DVT and PE almost five years ago at 21 years old. My leg was hurting, but I kept ignoring it. When my dog Kiko started sniffing my leg and whining, I felt that something was wrong because that was unusual behavior for him. I went to urgent care, and they sent…

On January 19, 2024, I received a call from my 13-year-old son, Christian. He was struggling to breathe. He’d been unwell for weeks, starting with an unknown virus that had progressed to pneumonia. Just the day before, he was diagnosed and treated in an ER. We took him back, assuming his breathing issues were a…

I started having superficial clots (SVTs) in the early 1990s, which was attributed to birth control. Genetic testing was not available at that time. I joined a list serve (email group) to learn more. Fifteen years later, with occasional SVTs and genetic testing now available, I was diagnosed with one factor V Leiden gene (heterozygous).…

I began having a belly ache on Friday, August 3, 2012. I was unable to use the restroom. The only relief I got was laying in hot water in the bathtub. I did this every half hour or so. It continued to worsen, and by Sunday, August 5, it was almost unbearable. Finally, my wife…