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Every Day Since My Diagnosis Has Been Challenging: Mymoena’s Story

I was working in the chemistry lab when suddenly I experienced a sharp, stabbing pain in my lower back that caused me to fall to the ground. I was rushed to the nearest hospital and, after some tests, I was sent home with the diagnosis of muscle spasms. From that day onwards, the pain in…

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My CVST Was Caught Just In Time: Naomi’s Story

I had my beautiful baby boy on August 26, 2023. I had a low-risk pregnancy and a water birth with no complications. At 2.5 weeks postpartum, I began to get a headache that I assumed was from sleep deprivation. As a migraine sufferer, I am used to severe headaches and had not been on my…

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Make Sure You Ask Questions Before Ingesting Prescribed Medications: Riddhi’s Story

I suffer from severe polycystic ovary syndrome (PCOS) and irregular cycles. My doctor prescribed birth control pills to regulate my cycle back in December 2021. I often felt cramps in my left leg, but I attributed them to dehydration or fatigue, given that I was a 20-year-old college student at the time. However, after my…

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Do Not Ignore Anything, Even if You Feel Like it’s Nothing: Eilidh’s Story

A few days before my collapse, I felt a little out of breath when moving around. However, I had just got back from travelling around Thailand and I also had a sore throat, so I assumed I was just a little run down. I was wrong. On March 22, 2023, I walked down the stairs…

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I Developed Two More PEs While Hospitalized: Sarah’s Story

I took poorly at the end of March 2018 with what I thought was a chest infection. I was prescribed antibiotics, but I was gradually getting worse. The doctor then started me on treatment for pneumonia. I was still feeling very poorly, though, and when I coughed up blood, I went to A&E (emergency room…

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It All Happened So Quickly: Charlotte’s Story

In September 2023, I was feeling poorly with what turned out to be a kidney infection. I couldn’t move as the pain was unbearable and was bed-bound for a few weeks. By the end of September, I was unable to walk. It all happened so quickly. My calf swelled up at least three times the…

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I Can Dance Despite Having a Chronic DVT: Debashmita’s Story

In March 2020, I couldn’t move my right leg after waking up, and soon my entire leg and thigh became rock-hard and swollen. I was rushed to the hospital and was diagnosed with deep vein thrombosis in my right leg, running from my right foot to my right pelvis. The doctors said that if had…

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Don’t Ignore the Ache: Demi’s Story

In September 2022, I gave birth to my second child, a little boy weighing 9 lbs. and 11 oz. Sadly, he passed away at 12 days old due to issues during my labor, which caused brain damage, specifically hypoxic-ischemic encephalopathy (HIE). At my six-week checkup with my general practitioner, I mentioned pain in my stomach…

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Be Aware of Your Body: Lyrene’s Story

In late February 2023, I was at work and experienced an extreme cramp in my right calf muscle. I just thought it was due to me being on my feet the entire day and I tried to walk it off. My calf was swollen, warm, and it was uncomfortable to walk. It felt as though…

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A PE Can Be Life-Changing: Aden’s Story

I woke at about 3 a.m. with the most intense stabbing pain in the right-hand side of my chest, towards the back. I assumed that I had slept funny and that I had simply trapped a nerve or something. The pain was unbelievable, though. I took acetaminophen but it did nothing. At 8 a.m., the…

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