Misdiagnosed
Be Your Own Advocate: Jo Anna’s Story
My first pulmonary embolism was on August 15, 2015. I was on birth control for irregular cycles and began having pain in my lower right side, which I thought was a pulled muscle. A week after the symptoms, the pain was unbearable. I went to the ER and was diagnosed with a right lung pulmonary…
I Suffer From Health Anxiety and PTSD Since This Ordeal: Kerry’s Story
In October 2017, I had a long day working behind my desk and had not gotten up or hydrated much. After about 10 hours, I headed straight to a volleyball game as I played in a league. Midway through the game, I experienced a sharp, painful cramp in my right calf that would not subside.…
Advocating For Awareness Has Been Incredibly Rewarding: Dan’s Story
On July 31, 2021, after being misdiagnosed and sent home almost a week prior, I finally received a diagnosis that would forever change my life: sub-massive pulmonary emboli and pulmonary infarction. I call it “the back pain that saved my life.” My primary symptom was upper back tightness and discomfort, which I later learned was…
They Couldn’t Figure Out What Was Wrong: Shantelle’s Story
When I was 20, I had some pain in my leg. I chalked it up to a pulled muscle. In the next few days, it seemed to get worse. My mom convinced me to go to the hospital, but they told me I was constipated and sent me home. The pain continued to get worse…
I’m Happy to Be Alive: Lizzie’s Story
In September 2022, I underwent a foam sclerotherapy on the great saphenous vein in my left leg to treat a varicose vein. This is a minimally-invasive, non-surgical procedure that involves injecting a foam mixture into varicose veins to treat underlying vein conditions. At the time, I was unknowingly Covid positive for the second time in…
I Didn’t Give Blood Clots a Second Thought Before Experiencing Mine: Alison’s Story
Last July, I started feeling tightness in my chest when I breathed in deeply. I ignored it for awhile, as it didn’t seem to cause any real issues. A month or so later, I went to my doctor to make sure it wasn’t Covid or another respiratory infection. The doctor ran basic bloodwork, which came…
Three DVTs in Two Decades: Heather’s Story
I’m 43. My first DVT experience was at 19 years old while in college. Long story short, I was sent home by two different doctors over two months even though my leg was in excruciating pain and eventually could barely walk. The third doctor knew what was wrong with me within minutes and sent me…
Please Listen to Your Body: Kia’s Story
I’ve always had a history of health anxiety, always expecting the worst whilst hoping for the best. It took many years for me to manage my fears and understand when I was being rational or otherwise. Toward the end of April 2024, I had this horrible chest pain, directly along the left side of my…
My Teen Suffered a PE After Surgery: An Anonymous Parent
My family has an extensive history of DVTs and PEs leading up to my teen’s blood clotting episode. I have three grandparents with confirmed clots, one of whom had a filter placed. One of my parents and their sibling both had multiple clots. My teen had spinal fusion with rods for scoliosis, and because of…
I Spent 18 Months on Supplemental Oxygen: Maresa’s Story
I had been having what I considered typical cold symptoms for about a month. Ongoing negative COVID tests gave little clarity. The doctors initially diagnosed me with a sinus infection then and pneumonia when the symptoms didn’t subside. I woke up Valentines Day 2022 with total numbness on my right side. I could not make…