Misdiagnosed
I Was Told it Was Just Inflammation: Alphonso’s Story
I am a 48-year-old male and in March 2023, I was diagnosed with a blood clot spanning from my lower right calf up to the pelvic area. This was the result of a meniscus procedure I had done on my right knee approximately four weeks earlier. The first symptoms I experienced were tightness, swelling,…
‘It’s a Minor Pain and This Girl is Making a Fuss About it:’ Pradnya’s Story
I was 21 years old when I began experiencing cramps, pain, and a burning sensation in my left calf. I visited multiple providers, who told me my symptoms might be due to a deficiency. But I woke up one morning and couldn’t stand up. I had a shooting pain from my left groin to my…
I Saw Five Doctors Before I was Diagnosed: Sherrye’s Story
My story is not that I had an extensive deep vein thrombosis (DVT), since this happens to so many of us. My story is that it took me five weeks and five doctors, plus one physical therapist to have my symptoms truly heard and diagnosed. I had even asked all the right questions and pursued…
The Hospital Was Baffled By My Symptoms: Tyler’s Story
In 2018, when I was 21 years old and just over three months postpartum, I was diagnosed with multiple pulmonary emboli (PE). I started having trouble breathing in the early evening which I assumed was just my asthma acting up. This continued all through the night and into the morning. I was using my asthma…
The Last Thing I Remember Was Trying to Say, ‘Help me:’ Heather’s Story
My blood clot story started at a time that should’ve been the happiest of our lives — we had just become a family of four! A few days after giving birth to our second child, I developed a severe headache. Unfortunately, at the ER, I was misdiagnosed and treated for post-partum pre-eclampsia. After a few…
The Older I Get, the Scarier it Gets: Brenda’s Story
In 1983, I began experiencing pain in my side, shortness of breath and coughing up blood. At the ER, I was diagnosed with pleurisy, which is inflammation of the tissues that line the lungs and chest cavity. I was only 17 years old. Two weeks later, I began having pain in my left groin and…
I Was Dismissed Twice at the ER: Erin’s Story
On November 4, 2021, at the age of 27, I started experiencing pain in my neck that shot up through my head. I figured it was just pulled a muscle, but for the next three days the pain got worse. On November 8, four days after the pain started, I decided to go to urgent…
This Experience Changed My Entire Life: Kim’s Story
In September 2015, I was sitting in the ICU wondering how I had gotten there. Flash back to six months prior, I had severe depression and I weighed close to 300 pounds. I was also training for a 160-mile bike ride from Miami to Key West. During my training for this ride, I started experiencing…
This Needed More than a Tylenol Prescription: Ashley’s Story
At 31 weeks pregnant, I was getting ready for the arrival of my baby when I started experiencing extreme pain in my left leg. I remember going to my baby shower and barely being able to walk. This was very concerning, so after the baby shower, I called my OB/GYN and explained the symptoms I…
A Combination of Missed Risk Factors: Gina’s Story
In 2017, at 21 years old, I was undergoing my third surgery on my left knee after I had torn my ACL and meniscus playing college basketball. I was back on the court a few short weeks later, but felt that my hamstring was unusually tight. This didn’t seem right to me, so I decided…
