Filter Patient Stories by tags…

Family history

Factor V Leiden Runs In My Family: Abby’s Story

When I was a child, my brother and I were tested for factor V Leiden after my father had a clot that traveled to his lungs (PE) and was diagnosed with the factor V disorder. The test came back normal for both me and my brother. About 10 years later, I was 22, working my…

Read the full story

My Lungs Felt Itchy: Jessica’s Story

In 2021 I was feeling healthier than I had in years because I spent the previous 10 months working out and eating better. On April 14, I had varicose veins treated in my right leg. Two weeks later, I had a follow-up where they did an ultrasound on the leg and released me to resume…

Read the full story

I’m Proud of How Far I’ve Come: Juliana’s Story

Less than two days after giving birth to her first baby, my aunt died of blood clots in her lungs and heart. I was 13 at the time and the news shocked the whole family. Two weeks after her funeral, I had some strange leg pain. I thought I had pulled a muscle or injured…

Read the full story

My Teen Suffered a PE After Surgery: An Anonymous Parent

My family has an extensive history of DVTs and PEs leading up to my teen’s blood clotting episode. I have three grandparents with confirmed clots, one of whom had a filter placed. One of my parents and their sibling both had multiple clots. My teen had spinal fusion with rods for scoliosis, and because of…

Read the full story

The PCP Who Dismissed My Concerns Was Dismissed By Me: Kay’s Story

After having provoked blood clots from hip surgery (the symptoms I experienced included leg pain, shortness of breath, and chest pain) I asked my primary care physician if she would order bloodwork to determine if I have a clotting disorder. I was detailing my family members with similar issues: my mother had an unprovoked pulmonary…

Read the full story

I Almost Left the ER: Lucy’s Story

In October 2020 at age 28, I woke up at 5 a.m. with back pain. It felt like I pulled a muscle. Throughout the day, the pain got worse. It hurt to sit or lie down. By the next morning, I was vomiting from pain and decided to drive myself to the emergency room. The…

Read the full story

There’s A Reason I’m Still Here: Barbara’s Story

I am a 2x pulmonary embolism survivor. My first one was in July 2013. I had traveled out of the country, come home, and traveled for my daughter’s soccer games. I was on birth control and overweight. We got home from a weekend tournament, and when I went to stand up, it felt like I…

Read the full story

Every Day Since My Diagnosis Has Been Challenging: Mymoena’s Story

I was working in the chemistry lab when suddenly I experienced a sharp, stabbing pain in my lower back that caused me to fall to the ground. I was rushed to the nearest hospital and, after some tests, I was sent home with the diagnosis of muscle spasms. From that day onwards, the pain in…

Read the full story

He Passed Away on the Way to the Hospital: Brian’s Story

As told by his wife, Allison In January 2017, my husband Brian and I had been married for one year, and I had just given birth to our son seven weeks earlier. Brian started mentioning that he had bad calf pain. For a man that never complained, this was odd, but I didn’t know to…

Read the full story

It’s Important to Listen to Your Body: Dan’s Story

On Valentine’s Day 2013, I woke up with what I thought was a stomach virus. A few hours later, I was in the ER with a diverticulitis attack that split open my intestine and spent 10 days in the hospital. A few months later, I had another diverticulitis attack, but I caught it early and…

Read the full story