Family history

I am a 41-year- old woman. I was diagnosed with a massive pulmonary embolism (PE) and a large deep vein thrombosis (DVT), respectively, in my lung and left calf, in March of 2014. I had no idea what was going on. I was making my kids a snack and got so dizzy that it literally…

In 1983, I began experiencing pain in my side, shortness of breath and coughing up blood. At the ER, I was diagnosed with pleurisy, which is inflammation of the tissues that line the lungs and chest cavity. I was only 17 years old. Two weeks later, I began having pain in my left groin and…

I was first diagnosed with pulmonary emboli (PE), or blood clots in my lungs, on October 23, 2017. Doctors told me it was a miracle that I did not go into cardiac arrest and die because the clots in both lungs were the size of baseballs. I was rushed into emergency surgery to remove the…

In 2020, my daughter, Meredith (Mer for short), complained that she was having difficulty breathing. My wife and I dismissed it as perhaps a sinus condition or allergies. The next morning, Mer called us from school telling us she had passed out. She was rushed to the hospital where the physicians asked if she was…

In September 2015, I was sitting in the ICU wondering how I had gotten there. Flash back to six months prior, I had severe depression and I weighed close to 300 pounds. I was also training for a 160-mile bike ride from Miami to Key West. During my training for this ride, I started experiencing…

In December of 2020 I started having some breathing issues. It was a struggle to make it up stairs and I seemed more exhausted than usual. I thought I was just tired and needed to rest. I told myself I would rest over the holidays and that I would eventually be fine. January rolled around…

In 2017, at 21 years old, I was undergoing my third surgery on my left knee after I had torn my ACL and meniscus playing college basketball. I was back on the court a few short weeks later, but felt that my hamstring was unusually tight. This didn’t seem right to me, so I decided…

I had my first pulmonary embolism (PE) at the age of 30. My symptoms began with prolonged shortness of breath for about six weeks. There were many days when I woke up unable to breathe. I disregarded this symptom because I assumed I was just out of shape. However, my shortness of breath got progressively…

The morning of November 14, 2019 I fell in my bathroom and hit my head on the bathtub. I was unconscious, lying in a pool of blood, until I finally gained some life and crawled to call 9-1-1. When the medics arrived, I was barely able to breathe and went into cardiac arrest three times.…

The Road to Diagnosis As far back as my teenage years, I had experienced chronic shortness of breath. This worsened in my twenties and thirties as new symptoms emerged, including occasional chest and arm pains and general exhaustion. Over the years I sought the opinions of countless doctors, leading to misdiagnosis after misdiagnosis, …