Filter Patient Stories by tags…

Family history

The Day that Changed My Life Forever: Kelly’s Story

I was diagnosed with bilateral pulmonary emboli, or blood clots in my lungs, on July 20, 2020, at the age of 28. This clotting was provoked by estrogen-based birth control combined with immobility due to a recent wisdom teeth extraction. This was a day I will never forget and a day that changed my life…

Read the full story

A Family Affair: Kathy’s Story

“I have shortness of breath.” This was the oft-repeated comment to each of my doctors. I was diagnosed with breast cancer in April 2020. By August 2020, I had major surgery that included three surgeons: breast cancer surgeon, thoracic surgeon, and plastic surgeon. This was followed up by 30 rounds of radiation. I also complained…

Read the full story

Educate and Listen to Your Body: Tina’s Story

My two pregnancies were marked by dangerous blood clots – the first time when I was 23 weeks pregnant and the second time when I was 27 weeks pregnant. These were my first blood clots, which started in my leg as a deep vein thrombosis or DVT and moved from my ankle to my groin.…

Read the full story

Take Note if You’re Taking the Pill: Leani’s Story

I am a 23-year-old female from South Africa who was on the hormonal birth control pill for skin purposes. As a human physiology and genetics graduate, I knew the risks of taking contraceptives and how it increases blood viscosity, or thickness, but I never thought that it was going to happen to me, even though…

Read the full story

Grateful to Be Alive: Melanie’s Story

I am 53 years old, a busy business owner, wife, and mother. Being diagnosed with PE has rocked my world. I ran a marathon in May 2016. A month later, during my annual exam, my gynecologist suggested I take birth control to “get through menopause without having to deal with the nuisances.” A voice inside…

Read the full story

Youth Doesn’t Equal Invincibility: Helen’s Story

The day my life almost ended was a picturesque, snow-dappled Saturday in December. I was a 22-year-old on an adventure, visiting Germany for the first time and staying with some old friends. I couldn’t wait to see what an authentic German “Weihnachten” had to offer. Little did I know, my life was about to be…

Read the full story

The Day that Changed My Life: Philip’s Story 

My name is Philip Begley, I am 56 years old, and I live in England. My story began on November 22, 1999. My truck was in for MOT annual service, so my boss said to start work late the next day. The next day came, Tuesday, and I was sitting down, putting my boots on…

Read the full story

My Baby Had a CVST: Ivanna and Giovanna’s Story

My name is Giovanna, and I am the mother of baby Ivanna. We are from Mexico, and I want you to share our story. My family has a history of genetic thrombophilia – I had three DVTs in my right leg – but doctors said that we didn’t have to worry about our baby, because…

Read the full story

A DVT in My Arm Changed My Life: Hailey’s Story

My name is Hailey Rutherford and I am a 23 years old. My story is complicated. I was married last year on February 7 and experienced a lot of life changes. One of those changes was being put on birth control pills. Due to irregular menstrual bleeding, I was switched to a stronger dosage pill. On…

Read the full story

This Has Changed Me Forever: Scarlett’s Story

When I was 14 years old, my father died at age 41 of massive pulmonary emboli (PE). At that time, there was no genetic testing to determine if he had a clotting disorder. I am 49 years old now, and I survived bilateral pulmonary emboli (PE) with deep vein thrombosis (DVT) one year ago. I…

Read the full story