Filter Patient Stories by tags…

Protein S deficiency

If I Had Waited One More Day, I Wouldn’t Be Here: Heather’s Story

Last March, I had turned 35 exactly a week before my traumatic discovery. I had a terrible, terrible, headache. I knew that after a few days of having this head pain, something wasn’t right. I was flown out of my local emergency room to a stroke center, where I was told I had two brain…

Read the full story

I Was Filled With Clots: Savannah’s Story

I had my son via C-section in April 2023. During my pregnancy, doctors said my leg pain was sciatica. After having my son, I was having severe headaches, and the pain medicine I was given didn’t help. A week later, I had three seizures. After the first seizure, we went to a local hospital. They…

Read the full story

My Life Is Not the Same: Lisa’s Story

I remember how excited I was. I was five months pregnant with my son. I had just started feeling him kick and move and I was busy planning the nursery, clothes, pictures, and working. When I left work on a Friday, my left leg was heavy and I was dragging it. Over the weekend my…

Read the full story

My Newborn Son Developed a DVT Before Birth: Sydney and William’s Story

My son William was born August 21, 2020 and was healthy. But two days later, we noticed that his right leg was swelling up and turning purple. He was transferred to our local children’s hospital and he was admitted to the NICU on August 24, 2020.   We were in the NICU until September 11. He…

Read the full story

I’m Still Struggling After Months of Recovery: Melissa’s Story

I went to the ER in April 2020 with severe pain in my right chest and back area. I couldn’t lie flat, or take any deep breaths, like coughs or sneezes. I couldn’t bend forward to pick anything up, and I was getting fatigued from the pain. It had gone on for three days before…

Read the full story

Take Control and Take Steps to Prevent Blood Clots: Ashley’s Story

My name is Ashley, and I was diagnosed with factor V Leiden, protein S deficiency, and protein C deficiency in March 2017. I was a waitress at the time, and I had just torn my shoulder due to a weight lifting accident. So, I started running outside a lot to stay active before I had…

Read the full story

I Had Three PEs: Kirsys’ Story

For all of my life, I have struggled with my weight. When I was 23 and 346 pounds, I decided to get gastric bypass surgery. That is when my nightmare started.  After the surgery, I followed my doctor’s orders to walk as much as possible. However, I started experiencing chest pain about a week later…

Read the full story

Back Pain was my First Symptom: Kassidy’s Story

Five years ago, at the age of 23, I developed dozens of blood clots in both of my legs, my pelvis, and my stomach.  Two weeks earlier, I was experiencing daily back pain on my lower right side. My OB/GYN chalked the pain up to ovarian cysts, which had never been a problem before. I…

Read the full story

Even Babies Can Get Blood Clots: Julian’s Story

  I want to share my story. My mom helped me write this: My name is Julian Adams, I’m 5 years old. I live in Belgium. When I was (exactly) 1 year old, I developed a blood clot in my leg, as a result of the chicken pox. I was very sick and I was…

Read the full story

Misdiagnosed Repeatedly: Cheryl’s Story

I noticed I had a cough that would not go away in November 2007. I knew it wasn’t a cold, because I didn’t have any other symptoms of a cold.  I went to my doctor the next month, and she couldn’t identify a cause.  She suggested that I try allergy medication for a week, but…

Read the full story