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My Newborn Son Developed a DVT Before Birth: Sydney and William’s Story

My son William was born August 21, 2020 and was healthy. But two days later, we noticed that his right leg was swelling up and turning purple. He was transferred to our local children’s hospital and he was admitted to the NICU on August 24, 2020.   We were in the NICU until September 11. He…

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I Had a Blood Clot at 14: McKenna’s Story

When I was 14, I flew to my dad’s house in California to celebrate Christmas with him and my siblings. By the middle of the week, my left thigh was swollen, red, and hot and I couldn’t walk on it. I tried many things to get myself moving, but it hurt too much.   When I…

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We Lived in the Hospital for Six Months: Luca and Mousumi’s Story

My son Luca is 16 years old and has a rare clotting disorder called protein C deficiency. Doctors initially thought it was a bleeding disorder, but it turned out to be a clotting problem. He forms micro-clots that use up the clotting factors, which causes internal bleeding.  It started just before Luca turned two years…

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Getting It Checked Out Could Save Your Life: Wheeler’s Story

I am a true testament to the fact that a blood clot or blood clotting disorder can affect anyone. As a healthy 14-year-old boy, blood clots had never even crossed my mind. My story begins on Christmas Eve in 2016. I was having trouble walking, and my leg was swollen. I was paranoid about it,…

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My Son is My Hero: Christian’s Story as told by his Mother, Tara

Early in January 2017, my healthy 16-year-old son Christian began experiencing lower back pain that radiated down the back of both of his legs. He has a black belt in Karate, and we thought he hurt himself in class, as did our pediatrician. A few days later, and after taking over-the-counter medications with little relief,…

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How I Overcame the Worst Time in My Life at 17 Years Old: Jenny’s Story

I always love to hear the stories of how people beat cancer and overcame diseases, but I never thought anything bad would happen to me. My name is Jenny, and I am a 17-year-old girl who lives in a small town in Iowa. In my high school, I am involved in many activities, including softball,…

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My Baby Had a CVST: Ivanna and Giovanna’s Story

My name is Giovanna, and I am the mother of baby Ivanna. We are from Mexico, and I want you to share our story. My family has a history of genetic thrombophilia – I had three DVTs in my right leg – but doctors said that we didn’t have to worry about our baby, because…

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I Survived the Clot: Macie’s Story

My name is Macie Baker, and three years ago, at the age of just 15, I experienced a deep vein thrombosis (DVT or blood clot in the leg). Today, I’m 18, and I have post-thrombotic syndrome. I had no idea that my life would change forever on June 11, 2013. That day, my life changed…

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Blood Clots Changed Our Lives: Corey’s Story, As Told By His Mother

My name is Tammy Capman and I would like to share a story about my son, Corey Capman. He is 17 years old and his story changed our lives in August 2014. Corey is a typical teenage boy. He has school, sports, friends, etc. He is outgoing and confident with goals for his future. Corey…

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My Son Had a Stroke at 17: Kyle and Laura’s Story

When my son, Kyle Posluszny, was 17 years old he developed a massive blood clot in his left leg. Doctors at the University of Michigan hospital had no idea what caused this and after being released on blood thinners, we were told, “This was your one blood clot that your given.” Recovery took a while,…

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