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Patient Stories

If You Aren’t Happy With the Answers, Keep Pushing: Ria’s Story

In April 2023, I had a spontaneous seizure at work. I was taken to the hospital and stayed for 10 days. On day 8, I had a lumbar puncture (also known as a spinal tap) to try and find the cause of the seizure. The following day, I woke up with an intense, sharp, left-sided…

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I Suffer From Health Anxiety and PTSD Since This Ordeal: Kerry’s Story

In October 2017, I had a long day working behind my desk and had not gotten up or hydrated much. After about 10 hours, I headed straight to a volleyball game as I played in a league. Midway through the game, I experienced a sharp, painful cramp in my right calf that would not subside.…

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Adjusting to the New Normal Was the Most Difficult Part: Kate’s Story

I experienced my pulmonary embolism in September 2023. Our youngest son and I had taken our older children to school, and the day went on normally. I noticed that I was becoming easily winded while doing really simple activities. My heart rate was also high. After school, our middle child had soccer practice and sat…

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Hormone Replacement Therapy Likely Caused My Blood Clots: Janene’s Story

In November 2023, I had been experiencing calf pain for several weeks, which I assumed was a pulled muscle as I had recently started an exercise program. I also had a nagging cough which I assumed was a seasonal cold. By November 30, my entire leg had doubled in size, so I quickly went to…

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I Refuse to Be a Victim: Mickey’s Story

After returning home from a weekend of skiing in Breckenridge, Colorado, I woke up with low back pain and pain in my chest on a Monday morning. I didn’t think much of it because it was normal for me to be sore after exercise, and I’ve always struggled with exercise-induced asthma as a lifelong Colorado…

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I’m Inspired By Others Who’ve Been Through This: Christina’s Story

I was 33 years old. I had a cramp in my leg and figured it was just that until it lasted three days. I’ve always been judged and misunderstood when it comes to my health anxiety but this time it saved my life. I knew something wasn’t right and made a doctor’s appointment. I had…

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I Couldn’t Walk Without Extreme Pain: Kris’ Story

In July 2022, I gave birth to my second child via C-section. In October, I was doing physical therapy for my back. I woke up one morning and my left leg felt off, like a bad muscle cramp. Within a few days, it progressed to the point where I could not walk without extreme pain…

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I’ll Never Know the Cause: Ann’s Story

On March 19, 2024, my right arm turned purple from hand to shoulder with swelling. I went to the ER and was diagnosed with a 10-inch DVT clot in my upper arm. Since then, I have had four surgeries and six hospital visits requiring a total of 22 days of inpatient care. Currently, I have…

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This Has Completely Changed Everything: Andrea and Andre’s Story

Wednesday, January 18, 2023, will be a day I will never forget. It started as an ordinary day at home with my two children, Amelia, and Andre. My son Andre, who had just turned 3 a month before, had been sick for about a week. I had already taken him to the pediatrician just three…

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Four DVTs Over the Years: Alejandra’s Story

In 2006, I was 31 years old, living in my home country of Venezuela, and 20 weeks pregnant with my first baby when I felt a pain like a knot in my left upper thigh. My mom suggested I keep my leg up the rest of the day and I could see my gynecologist in…

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