Patients Educating Patients

…Navigating Post-Thrombotic Syndrome, CTEPH and …

I Increased My Risk Without Realizing It: Lisa’s Story

…to May Thurner’s Syndrome. My name is Lisa Jensen and I am a fortunate survivor of both a deep vein thrombosis (DVT) and pulmonary embolism (PE). I was busy starting…

I Suffer from Anxiety and PTSD Now: Louise’s Story

…celiac artery compression syndrome and May-Thurner syndrome. In January 2018, while awaiting surgery, I had another DVT. I was admitted to hospital where I spent nine weeks. I had surgery…

We Lost Our Son at the Age of 20: Adam’s Story

…middle of his abdomen down to his knee. He had emergency surgery and a large stent placed. He was also diagnosed with May-Thurner syndrome and factor V Leiden. Adam was…

Antithrombin Deficiency

…the arm (upper extremity DVT), intestinal tract (portal vein …

Other Treatments

…arms due to damaged blood vessels, a condition known as …

Health Professionals

…to find information that is accurate and written in …

You Can’t Take Breathing For Granted: Leah’s Story

…key to prevention of post-thrombotic syndrome, after I first submitted my story to National Blood Clot Alliance, and I plan to discuss this with my primary care doctor. I take…

This Experience Helped Me Find My Love For Medicine: Zoe’s Story

…I’m on blood thinners for life. It is believed that the estrogen-based birth control I was taking had contributed to my clots. Also, I was diagnosed with May-Thurner syndrome, a…

What causes blood clots in children?

…of these conditions can cause blood clots: In May-Thurner …