The Right Treatment Changed My Life: Jan’s Story
…doctor every six months, and life was good. Thank God for the National Health Service! My next issue was post-thrombotic syndrome. I managed the best I could. I could walk…
Symposium on Pediatric Venous Thromboembolism in Acute and Chronic Illness Held at Nationwide Children’s Hospital (Columbus, OH) on March 18, 2013
…of all children with nephrotic syndrome develop …
MTS Has Changed Me: Jassmin’s Story
…for this syndrome is iliac vein compression syndrome, because the left iliac vein in the groin is compressed by the right iliac artery. This increases the likelihood of a DVT…
My Doctor Told Me There Was Nothing Wrong With Me: Billie’s Story
…was post-thrombotic syndrome and to stop coming to the ER. I then found a story on the Stop the Clot Facebook page about May-Thurner Syndrome. I made an appointment with…
Our 8-Year-Old Died of a Blood Clot: Garrett’s Story, as Told by his Mother
…was for ANA (anti-nuclear antibody) which the doctors thought indicated an autoimmune response that was triggered by infection. They did not know why he was clotting so much. This was…
The Fear of Death Loomed Over Me: Mercedes’ Story
…cause of the clots remained a mystery, with a positive antinuclear antibody test, but negative results for autoimmune diseases. Upon discharge, I was prescribed apixaban twice daily. Unfortunately, I had…
I’m Still Struggling After Months of Recovery: Melissa’s Story
…hit Canada, where I live, and they think it could have been a factor in my situation. I recently had the antibody test, but the likelihood of antibodies being detectable…
I Truly Felt This Was It: Kylie’s Story
…platelets was unreal to me. I was diagnosed with antiphospholipid syndrome (APS) and I’m also lupus anticoagulant positive. In terms of risk factors, I was on estrogen-based birth control. I…
April PEP Talk: Decoding the Link Between Autoimmune Disease & Blood Clots
Do you have an autoimmune disease such as lupus, rheumatoid …
Understanding Genetics of Thrombophilia / Inheritance & Testing
…related to genetic testing: Antiphospholipid …