MTHFR

In June 2017, I noticed a pain in my left calf. I had been walking several days a week, so I thought I may have pulled a muscle. I spent time trying to stretch it out over the next week, but it persistently got worse.    The pain I had been having in my calf then…

I injured my ankle in 2017 and needed surgery. Shortly after, I woke up in the middle of the night with intense pain in my back. I knew it was bad, as I was having difficulty moving. My husband took me to the ER, where I was fortunate that they did take me seriously. They…

In November 2016, I was at a wedding when my head started hurting. I took Tylenol, but it wouldn’t go away. In fact, it was getting worse. A couple of days later, my head hurt when I tried to turn, and I started getting pain behind my right eye and down the right side of…

During the summer of 2012, I was going into my senior year of college and was training for Kent State’s Annual Black Squirrel 5k Race. I grew up playing soccer and I figured running a 5k would be a breeze. Little did I know, it was going to change my life forever. I was up…

The morning of November 14, 2019 I fell in my bathroom and hit my head on the bathtub. I was unconscious, lying in a pool of blood, until I finally gained some life and crawled to call 9-1-1. When the medics arrived, I was barely able to breathe and went into cardiac arrest three times.…

My name is Lucy, and I am 22 years old. I had DVT (deep vein thrombosis or blood clot in the leg) and PEs (pulmonary embolism or blood clots in the lung) due to estrogen-based contraception. I am sharing my story to raise awareness about the risks of estrogen-based birth control in women of my…

I was 29 years old when I was first diagnosed with blood clots. I dropped a bench on my right foot and about a week later, I started to feel pain in my right ankle and knee. I went to see my doctor about two weeks after the pain started, because it wasn’t going away,…

In the winter of 2012, I started to feel strange tightness in my right calf and mild discomfort behind my knee. Instead of seeing my doctor, I spent a lot of time researching potential causes, including DVTs. The situation changed in April when my right ankle and calf swelled as if I had sprained it.…

I always thought of myself as person who wears many cape: a mom, a wife, and a friend. I was always on the go, shuffling my oldest child to high school and a job, taking both younger kids everywhere with me, while doing errands for myself, the house, the school, our brewery and at the…

When I was 14 years old, my father died at age 41 of massive pulmonary emboli (PE). At that time, there was no genetic testing to determine if he had a clotting disorder. I am 49 years old now, and I survived bilateral pulmonary emboli (PE) with deep vein thrombosis (DVT) one year ago. I…