MTHFR

I am a two time blood clot survivor. My first pulmonary embolism was at 21 after endometriosis surgery and while on birth control, and my symptoms included shortness of breath and back pain making it impossible to sit back or lie back. My second clot happened when I was 25 after a cross-country flight. I…

I had my son via C-section in April 2023. During my pregnancy, doctors said my leg pain was sciatica. After having my son, I was having severe headaches, and the pain medicine I was given didn’t help. A week later, I had three seizures. After the first seizure, we went to a local hospital. They…

In June 2017, I noticed a pain in my left calf. I had been walking several days a week, so I thought I may have pulled a muscle. I spent time trying to stretch it out over the next week, but it persistently got worse.    The pain I had been having in my calf then…

I injured my ankle in 2017 and needed surgery. Shortly after, I woke up in the middle of the night with intense pain in my back. I knew it was bad, as I was having difficulty moving. My husband took me to the ER, where I was fortunate that they did take me seriously. They…

In November 2016, I was at a wedding when my head started hurting. I took Tylenol, but it wouldn’t go away. In fact, it was getting worse. A couple of days later, my head hurt when I tried to turn, and I started getting pain behind my right eye and down the right side of…

During the summer of 2012, I was going into my senior year of college and was training for Kent State’s Annual Black Squirrel 5k Race. I grew up playing soccer and I figured running a 5k would be a breeze. Little did I know, it was going to change my life forever. I was up…

The morning of November 14, 2019 I fell in my bathroom and hit my head on the bathtub. I was unconscious, lying in a pool of blood, until I finally gained some life and crawled to call 9-1-1. When the medics arrived, I was barely able to breathe and went into cardiac arrest three times.…

My name is Lucy, and I am 22 years old. I had DVT (deep vein thrombosis or blood clot in the leg) and PEs (pulmonary embolism or blood clots in the lung) due to estrogen-based contraception. I am sharing my story to raise awareness about the risks of estrogen-based birth control in women of my…

I was 29 years old when I was first diagnosed with blood clots. I dropped a bench on my right foot and about a week later, I started to feel pain in my right ankle and knee. I went to see my doctor about two weeks after the pain started, because it wasn’t going away,…

In the winter of 2012, I started to feel strange tightness in my right calf and mild discomfort behind my knee. Instead of seeing my doctor, I spent a lot of time researching potential causes, including DVTs. The situation changed in April when my right ankle and calf swelled as if I had sprained it.…