Patient Stories

When I was 14 years old, my father died at age 41 of massive pulmonary emboli (PE). At that time, there was no genetic testing to determine if he had a clotting disorder. I am 49 years old now, and I survived bilateral pulmonary emboli (PE) with deep vein thrombosis (DVT) one year ago. I…

My name is Alyssa and I was diagnosed with multiple pulmonary emboli (PEs) in January 2012 at the age of 21. I have finally gotten past the “I can’t believe this happened to me” stage and have finally adopted the “I can do something about this” attitude. My three-year anniversary of pulmonary emboli is coming up…

I had just been released from the hospital due to a severe allergic reaction. I was allowed to leave, but with some medication and no signs of blood clots. It had been just two days after I left when I began to get a high fever with swollen lymph nodes on the right side of…

I discovered that I was heterozygous for the factor V Leiden mutation in June of 2000 after my mother tested positive during a workup for superficial thrombophlebitis. My primary care physician recommended that I be tested, since I was taking oral contraceptive pills. She also had a friend who had been recently diagnosed with factor…

In every person’s life, there is one instance or one moment that changes them in ways they never believed possible. A moment where they reevaluate all that they have and all that they have worked for. Whether it is a good or bad change, it is without a doubt a memorable one. Some happen later…

When my son, Kyle Posluszny, was 17 years old he developed a massive blood clot in his left leg. Doctors at the University of Michigan hospital had no idea what caused this and after being released on blood thinners, we were told, “This was your one blood clot that your given.” Recovery took a while,…

My name is Caitlin and this is my blood clot and May-Thurner Syndrome (MTS) story. At 29, I was an active person, traveling a lot, playing sports, and chasing my nieces and nephews. One day, I thought I had pulled a muscle in my left thigh but shook it off with exercise. However, when the…

I recently had my first encounter with blood clots. I was a rugby player who suffered many blows from both tackling and being tackled. After one particular blow to the stomach, I started having really bad pain in the small of my back, but assumed I had only pulled a muscle. A month later, I…

JUST LISTEN… If you are pregnant, you ARE at risk for DVT. Katiesvoice.org is dedicated to the memory of Katie M. Projansky (Anderson) and the promise of preventing DVT/PE related deaths in pregnancy. Katie’s Voice is an example of how the seeds of personal tragedy can blossom into great hope and possibility. It was five…

I am sharing my son Kyle’s story for two reasons: To bring awareness to how children are affected by blood clots and in hope of finding others who may suffer from similar conditions. In August of 2010, my son was eight years old, healthy, and extremely active, playing baseball, football and hockey.  That summer he had…