Protein C Deficiency Often Has No Symptoms: Alicia’s Story

…results, second opinions, and even missed results. After being told that my PEs were from my birth control alone, I was diagnosed with Protein C deficiency a month later, which…

My PE Was Linked To Protein C Deficiency: Michael’s Story

…there is additional testing they can do for blood clotting disorders. I agreed to this testing, and found out I have Protein C deficiency. Protein C balances pro-clotting and anti-clotting…

The Older I Get, the Scarier it Gets: Brenda’s Story

…was officially diagnosed with antithrombin III (ATIII) deficiency. However, in 2000, I saw a specialist researching clotting disorders, and this time I tested negative for ATIII deficiency. We know I…

My Commitment to CTEPH Awareness: Harry’s Story

…fact, it wasn’t till the early 2000s that Stanford definitively determined that my clotting was hereditary. Not surprising to me. I had something called antithrombin 3 deficiency, which greatly increases…

Everything You Ever Needed To Know About Blood Clots, Part Five

…Genetic Predisposition Acquired Trigger(s) Thrombosis Family …

I Was In Denial: Brianne’s Story

Brianne Paisley is pregnant and has Protein C deficiency. She had a large DVT in her groin during this pregnancy for which she self-injected with low molecular weight heparin, but…

How I Overcame the Worst Time in My Life at 17 Years Old: Jenny’s Story

…being active was the cause of it. She also did a blood test to test for every blood disorder, and I was diagnosed with low antithrombin. Antithrombin is a protein…

What is thrombophilia?

…mechanical heart valve, or the development of abnormal proteins …

Misdiagnosed Repeatedly: Cheryl’s Story

…tests showed that I had Protein S deficiency, Protein C deficiency, and Antithrombin deficiency. My hematologist said it is like being struck by lightning three times. I will be on…