Owning My Coagulation Health Management

Categories: Blog,News,Patient Stories

The personal story below is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact info@stoptheclot.org with questions about this matter.


Like many of you who are reading this, I am a Warfarin “lifer.” Also, like many of you, I have experienced the frequent delays and inconvenience of waiting at busy lab sites for the brief procedure resulting in my PT-INR ratios. As a busy professional, I felt a growing need to challenge this “traditional” approach. I found my answer in taking ownership of my coagulation health management through patient self-testing.

Patient self-testing involves using a device similar to those used for testing blood glucose levels. I learned that I could do my PT-INR testing at home, on my schedule and with highly accurate results. Knowing this, I turned to the Internet to research how I could make this work. I learned about coagulation monitors on manufacturer web sites. When I could not locate a local ‘in-network’ DME (Durable Medical Equipment) provider, I chose one via the Web. This DME provider became a one-stop source for the coagulation monitor, supplies, physician coordination, 3rd party insurance reimbursement and training.

Initially, I experienced some reimbursement delays due to lost files and a time-consuming approval process. Eventually, however, my insurance plan agreed to cover all of my DME equipment and supplies and processes it as ‘in-network’. I have also developed my own Excel spreadsheet with charts to log and manage my coagulation levels. I coordinate my testing results and dosage adjustments with my specialist by phone. Patient self-testing may not be appropriate for everyone. However, I like the flexibility and satisfaction that I now have from owning my coagulation health management. The key is in making the patient self-testing process easier for all who desire the benefits of this approach. I challenge NBCA to lead the advocacy charge in overcoming obstacles with public and private 3rd party payers and in documenting the health and economic benefits.

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Author: admin