The National Blood Clot Alliance (NBCA)
The National Blood Clot Alliance (NBCA) sees a future in which the number of people suffering and dying from blood clots in the United States is reduced significantly.
The National Blood Clot Alliance (NBCA) is a 501(c)(3), non-profit, voluntary health organization dedicated to advancing the prevention, early diagnosis and successful treatment of life-threatening blood clots such as deep vein thrombosis, pulmonary embolism, and clot-provoked stroke.
NBCA works on behalf of people who may be susceptible to blood clots, including, but not limited to, people with clotting disorders, atrial fibrillation, cancer, traumatic injury, and risks related to surgery, lengthy immobility, child birth and birth control.
NBCA accomplishes its mission through programs that build public awareness, educate patients and healthcare professionals, and promote supportive public and private sector policy.
- The National Blood Clot Alliance (NBCA) is a patient-led, voluntary health advocacy organization.
- NBCA volunteers include many of the nation’s foremost experts on blood clots and blood clotting disorders.
- NBCA programs include patient education and professional training on the signs, symptoms, and prevention of blood clots and clotting disorders.
- NBCA combines the unique perspectives of healthcare providers, individuals afflicted with clotting disorders, and community leaders who are passionate about this healthcare crisis.
- NBCA’s Medical and Scientific Advisory Board (MASAB) includes nationally recognized experts in thrombosis and thrombophilia.
- The National Blood Clot Alliance is headquartered in Rockville, MD.
The Founding of NBCA
NBCA’s founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop hosted by The Centers for Disease Control and Prevention 12 years ago, in 2003. Sharing a common concern, they resolved to build a national organization to advocate for – and to educate and support — those affected by clotting disorders. Each Board member at that time, and most still today, have been touched personally by blood clots, DVTs, pulmonary embolism or such genetic variants as the Factor V Leiden gene mutation.
- Prevent thrombosis and its complications.
- Reduce death and illness related to thrombosis.
- Assist in establishing guidelines for prevention, treatment, and management of blood clots.
- Promote funding for and establishment of comprehensive thrombophilia programs to allow every patient access to thrombosis specialists within a reasonable distance where patients live.
- Promote and assist scientists with research efforts relating to all aspects of thrombosis and thrombophilia.
- Encourage activities to increase the number of specialists in thrombosis and thrombophilia, such as endowing training fellowships.
- Initiate and promote educational activities for the medical and patient community, and for the public. Create a network of self-funded local chapters to improve the quality of life for patients/families through appropriate support.
- Create a national policy agenda and a grassroots advocacy network.
For questions concerning NBCA, its programs or services or its website, please send inquiries to firstname.lastname@example.org