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Woman

The Doctor Told Her Not to Worry: Marsha’s Story

My younger sister Marsha had many blood clots over the years. She found out that she had protein S deficiency shortly after our father died in 1998. She had veins that were painful and found a doctor who was willing to strip them (phlebectomy). Marsha asked him about her history with clots. The doctor told…

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My CVST Was Caught Just In Time: Naomi’s Story

I had my beautiful baby boy on August 26, 2023. I had a low-risk pregnancy and a water birth with no complications. At 2.5 weeks postpartum, I began to get a headache that I assumed was from sleep deprivation. As a migraine sufferer, I am used to severe headaches and had not been on my…

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We Were Dismissed: Kaylie’s Story

As told by her mother, Tina. My daughter Kaylie passed away at the age of 21 from bilateral pulmonary emboli that had gone undiagnosed even though she had been to the doctor just three weeks prior to her death. Her symptoms were severe upper back pain near her shoulder, shortness of breath, and rapid heart…

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My Symptoms Were Misdiagnosed as Anxiety: Tamara’s Story

I had knee surgery and was six weeks post-op, so I had no worries about clots. I was also on birth control, though. I stretched one night and felt excruciating pain in my left rib. I could barely move. I managed to get to a hospital and was told it was costochondritis — inflammation of…

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I No Longer Live in Fear of Another Re-Clot: Staci’s Story

In July 2018, I developed a nagging dry cough and chest discomfort. I have a history of pneumonia, so I went to urgent care for a chest x-ray. It was clear and I was told I likely have a viral chest cold. The cough continued to linger on, not responding to over-the-counter cough medicine. As…

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Make Doctors Take Your Concerns Seriously: Gwendolyn’s Story

As told by her daughter LaKeitha My mother passed away after experiencing difficulty breathing for a week. Despite visiting the doctor, they didn’t consider a blood clot. One night, fearing the worst, my father rushed her to the hospital. Tests on her upper body led to her admission due to ongoing breathing issues. Tragically, she…

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The Fear of Death Loomed Over Me: Mercedes’ Story

It all began around the Christmas holiday in 2022 when I started experiencing what I thought was indigestion. Despite trying various over-the-counter medications, nothing seemed to relieve my discomfort. By New Year’s Eve, my condition had worsened, but I pushed through to celebrate the new year. However, while ascending the train steps, …

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Know the Warning Signs: Pam’s Story

As told by her daughter, Kelly My mother was 54 when she passed away from a pulmonary embolism. She had fallen and broken her ankle while walking across our street to look for a Mother’s Day card for my grandmother. The break was a bad one, so the orthopedic surgeon suggested surgery. We all were…

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Advocate For Yourself: Heidi’s Story

In June 2015, I fell and injured a varicose vein (superficial vein thrombosis) with significant bruising. I was told it was not life-threatening because it was an injury to a superficial vein. In late September, I started having problems breathing and tightness in my chest. I thought it was anxiety. A few days later, when…

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Make Sure You Ask Questions Before Ingesting Prescribed Medications: Riddhi’s Story

I suffer from severe polycystic ovary syndrome (PCOS) and irregular cycles. My doctor prescribed birth control pills to regulate my cycle back in December 2021. I often felt cramps in my left leg, but I attributed them to dehydration or fatigue, given that I was a 20-year-old college student at the time. However, after my…

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