Family history

In September 2015, I was sitting in the ICU wondering how I had gotten there. Flash back to six months prior, I had severe depression and I weighed close to 300 pounds. I was also training for a 160-mile bike ride from Miami to Key West. During my training for this ride, I started experiencing…

In December of 2020 I started having some breathing issues. It was a struggle to make it up stairs and I seemed more exhausted than usual. I thought I was just tired and needed to rest. I told myself I would rest over the holidays and that I would eventually be fine. January rolled around…

In 2017, at 21 years old, I was undergoing my third surgery on my left knee after I had torn my ACL and meniscus playing college basketball. I was back on the court a few short weeks later, but felt that my hamstring was unusually tight. This didn’t seem right to me, so I decided…

I had my first pulmonary embolism (PE) at the age of 30. My symptoms began with prolonged shortness of breath for about six weeks. There were many days when I woke up unable to breathe. I disregarded this symptom because I assumed I was just out of shape. However, my shortness of breath got progressively…

The morning of November 14, 2019 I fell in my bathroom and hit my head on the bathtub. I was unconscious, lying in a pool of blood, until I finally gained some life and crawled to call 9-1-1. When the medics arrived, I was barely able to breathe and went into cardiac arrest three times.…

The Road to Diagnosis As far back as my teenage years, I had experienced chronic shortness of breath. This worsened in my twenties and thirties as new symptoms emerged, including occasional chest and arm pains and general exhaustion. Over the years I sought the opinions of countless doctors, leading to misdiagnosis after misdiagnosis, …

I was diagnosed with bilateral pulmonary emboli, or blood clots in my lungs, on July 20, 2020, at the age of 28. This clotting was provoked by estrogen-based birth control combined with immobility due to a recent wisdom teeth extraction. This was a day I will never forget and a day that changed my life…

“I have shortness of breath.” This was the oft-repeated comment to each of my doctors. I was diagnosed with breast cancer in April 2020. By August 2020, I had major surgery that included three surgeons: breast cancer surgeon, thoracic surgeon, and plastic surgeon. This was followed up by 30 rounds of radiation. I also complained…

My two pregnancies were marked by dangerous blood clots – the first time when I was 23 weeks pregnant and the second time when I was 27 weeks pregnant. These were my first blood clots, which started in my leg as a deep vein thrombosis or DVT and moved from my ankle to my groin.…

I am a 23-year-old female from South Africa who was on the hormonal birth control pill for skin purposes. As a human physiology and genetics graduate, I knew the risks of taking contraceptives and how it increases blood viscosity, or thickness, but I never thought that it was going to happen to me, even though…