Patient Stories
Increasing Awareness of Factor V Leiden: Elizabeth Varga’s Story
I discovered that I was heterozygous for the factor V Leiden mutation in June of 2000 after my mother tested positive during a workup for superficial thrombophlebitis. My primary care physician recommended that I be tested, since I was taking oral contraceptive pills. She also had a friend who had been recently diagnosed with factor…
Changed in an Instant: Jenna’s Story
In every person’s life, there is one instance or one moment that changes them in ways they never believed possible. A moment where they reevaluate all that they have and all that they have worked for. Whether it is a good or bad change, it is without a doubt a memorable one. Some happen later…
My Son Had a Stroke at 17: Kyle and Laura’s Story
When my son, Kyle Posluszny, was 17 years old he developed a massive blood clot in his left leg. Doctors at the University of Michigan hospital had no idea what caused this and after being released on blood thinners, we were told, “This was your one blood clot that your given.” Recovery took a while,…
Words I Will Never Forget: Caitlin’s Story
My name is Caitlin and this is my blood clot and May-Thurner Syndrome (MTS) story. At 29, I was an active person, traveling a lot, playing sports, and chasing my nieces and nephews. One day, I thought I had pulled a muscle in my left thigh but shook it off with exercise. However, when the…
I am a Survivor, and I am Proud: Kaitlyn’s Story
I recently had my first encounter with blood clots. I was a rugby player who suffered many blows from both tackling and being tackled. After one particular blow to the stomach, I started having really bad pain in the small of my back, but assumed I had only pulled a muscle. A month later, I…
Pregnant Women Are at Risk: In Memory of Katie
JUST LISTEN… If you are pregnant, you ARE at risk for DVT. Katiesvoice.org is dedicated to the memory of Katie M. Projansky (Anderson) and the promise of preventing DVT/PE related deaths in pregnancy. Katie’s Voice is an example of how the seeds of personal tragedy can blossom into great hope and possibility. It was five…
One in A Million: Kyle’s Story, as Told by his Mom, Stacy
I am sharing my son Kyle’s story for two reasons: To bring awareness to how children are affected by blood clots and in hope of finding others who may suffer from similar conditions. In August of 2010, my son was eight years old, healthy, and extremely active, playing baseball, football and hockey. That summer he had…
The Perfect Storm: Jessica’s Story
My name is Jessica and I’m so excited to share my experience with Team Stop the Clot. Less than a year ago I was sitting in a hospital bed thinking my life as an athlete was over. My pity party came to an end when I found this blog. Reading all of the Clot Buster…
Repeatedly Misdiagnosed: Kathy’s Story
My name is Kathy and I survived pulmonary emboli in 2003. I remember as young as 12 years old feeling pain in my chest. When I asked in 1979 it was dismissed as growing pains. When I asked a doctor in 1989 I was told it was panic attacks. I spent years thinking that I…
Grateful For My Knowledge of Factor V Leiden: Lori Preston’s Story
Lori Preston, founding member of NBCA, learned of her inherited clotting disorder during pregnancy: “I remember the conversation as if it were yesterday. My mother shared with me the painful recollection of the loss of her stillborn son she delivered 14 months before she gave birth to me. We never talked about this sad experience again, not until…
