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Patient Stories

MTS Can Cause Deadly DVTs: Lorilyn’s Story

I worried a lot about being diagnosed with illnesses that ran rampant in my family, such as breast cancer, heart disease, and diabetes. The one thing I never worried about was blood clots. In 2003, I turned 40 years old, and I had surgery to remove the right lobe of my thyroid, due to a…

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A Life-Threatening Diagnosis Changed My Life: Ashley Cassidy’s Story

I was 23 years old in 2013, and I was a healthy individual who was very physically active, running, and going to the gym preparing for boot camp. It was July and two months before I was scheduled to leave for basic training to fulfill my Navy Corpsman contract that I had signed seven months…

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Forever Loved and Never Forgotten: Rickey’s Story as told by his Mother, Dawn Ortiz Colomy

My son, Richard Scott Colomy Jr. 3rd, who we call Rickey, was born with vascular malformation and after searching for many medical opinions to help him, we settled with the Children’s Hospital of Pennsylvania (CHOP), who provided us with immediate information about his condition. Along with a team of doctors, his plastic surgery specialist …

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Trust Your Gut: Kaitlyn’s Story

In April 2013, I traveled to Japan to visit my brother, and then to California to visit my grandfather. When I got home from my two-week vacation, I woke up one morning with a shooting pain in my leg. I thought perhaps I slept wrong or I wore the wrong shoes at work the previous…

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Surviving a Silent Killer: Lisa’s Story

I always thought of myself as person who wears many cape: a mom, a wife, and a friend. I was always on the go, shuffling my oldest child to high school and a job, taking both younger kids everywhere with me, while doing errands for myself, the house, the school, our brewery and at the…

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A Second Chance at Life: Danet’s Story

On January 4, 2010, I had just given birth to my first child at the age of 20. It was an emergency C-section that I was not planning on. The next day, I was having a hard time breathing, and I informed the nurses about this. They told me it was normal pain from birth…

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Lower Back Pain was a Sign of Blood Clots: Kevin’s Story

“It’s nothing,” I thought when I had lower back pain at the age of 19 followed by odd cramps in my quadriceps while working out. See a doctor? “No way,” I thought. “I will fight through this, I can tolerate pain and I will be fine.” I even wrote off feeling exhausted, thinking that I…

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Surviving Made Me Stronger: DesiRae’s Story

In December 2015, I was a 32-year-old newlywed and my life seemed perfect. Three months earlier, Brian and I had our dream wedding in Sonoma, CA, and were planning our first Christmas together as Mr. and Mrs. Since we went home to the Midwest to visit our families over Thanksgiving, we decided to take a trip…

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The Day that Haunts Me Still: Dawn Leslie’s Blood Clot Story

On Sunday, August 9, 2015, after two weeks of pain in my right leg that felt like a strained muscle, I finally went to an urgent care facility. The doctor looked at my calf and stated that it should not have been swollen for two weeks from a muscle strain. She was very clear that…

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My Baby Had a CVST: Ivanna and Giovanna’s Story

My name is Giovanna, and I am the mother of baby Ivanna. We are from Mexico, and I want you to share our story. My family has a history of genetic thrombophilia – I had three DVTs in my right leg – but doctors said that we didn’t have to worry about our baby, because…

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