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Patient Stories

Trust Your Gut: Kaitlyn’s Story

In April 2013, I traveled to Japan to visit my brother, and then to California to visit my grandfather. When I got home from my two-week vacation, I woke up one morning with a shooting pain in my leg. I thought perhaps I slept wrong or I wore the wrong shoes at work the previous…

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Surviving a Silent Killer: Lisa’s Story

I always thought of myself as person who wears many cape: a mom, a wife, and a friend. I was always on the go, shuffling my oldest child to high school and a job, taking both younger kids everywhere with me, while doing errands for myself, the house, the school, our brewery and at the…

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A Second Chance at Life: Danet’s Story

On January 4, 2010, I had just given birth to my first child at the age of 20. It was an emergency C-section that I was not planning on. The next day, I was having a hard time breathing, and I informed the nurses about this. They told me it was normal pain from birth…

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Lower Back Pain was a Sign of Blood Clots: Kevin’s Story

“It’s nothing,” I thought when I had lower back pain at the age of 19 followed by odd cramps in my quadriceps while working out. See a doctor? “No way,” I thought. “I will fight through this, I can tolerate pain and I will be fine.” I even wrote off feeling exhausted, thinking that I…

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Surviving Made Me Stronger: DesiRae’s Story

In December 2015, I was a 32-year-old newlywed and my life seemed perfect. Three months earlier, Brian and I had our dream wedding in Sonoma, CA, and were planning our first Christmas together as Mr. and Mrs. Since we went home to the Midwest to visit our families over Thanksgiving, we decided to take a trip…

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The Day that Haunts Me Still: Dawn Leslie’s Blood Clot Story

On Sunday, August 9, 2015, after two weeks of pain in my right leg that felt like a strained muscle, I finally went to an urgent care facility. The doctor looked at my calf and stated that it should not have been swollen for two weeks from a muscle strain. She was very clear that…

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My Baby Had a CVST: Ivanna and Giovanna’s Story

My name is Giovanna, and I am the mother of baby Ivanna. We are from Mexico, and I want you to share our story. My family has a history of genetic thrombophilia – I had three DVTs in my right leg – but doctors said that we didn’t have to worry about our baby, because…

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10 Centimeters from Death: Rebeca Bushell’s Blood Clot Story

I am only 18 years old, and it has been a month since I was diagnosed with an extensive blood clot (deep vein thrombosis or DVT) in my left leg. It first started when I felt some soreness in my leg one day. Not having any education about blood clots, I just thought I had…

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Born with Prothrombin Mutation Gene: Tyson’s Story

I was healthy 39-year-old female, who had been married for almost a year with an 11-year-old daughter when I experienced stomach pains, diarrhea, and vomiting that concerned me. I called the doctor’s office two times in about four days, and both times, I was told I had a stomach virus and sent home. I will…

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Gaining the Confidence to Pursue a Diagnosis: Helen’s Story

I am an avid recreational bicyclist. At the age of 51, I attempted my first multi-day bicycle tour. A couple of days after the six-day tour, I noticed a sharp pain in my left calf. It didn’t feel like a muscle pull. Honestly, it felt like a blood clot, but there was no redness and no…

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