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Lupus anticoagulant

I Truly Felt This Was It: Kylie’s Story

In February 2023, I went to the ER with abdominal pain I couldn’t explain. After four days in step-down ICU, 30+ labs, two CT scans, three ultrasounds, a chest X-ray, and an echocardiogram, doctors told me I had blood clots, which compromised my blood flow and caused splenic infarcts. After a consult with my hematologist,…

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This Has Changed Me Forever: Scarlett’s Story

When I was 14 years old, my father died at age 41 of massive pulmonary emboli (PE). At that time, there was no genetic testing to determine if he had a clotting disorder. I am 49 years old now, and I survived bilateral pulmonary emboli (PE) with deep vein thrombosis (DVT) one year ago. I…

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My Family Was Told I Probably Wouldn’t Survive: Caitlin’s Story

My name is Caitlin Augustine; I’m 22 years old and lucky to be alive.  I have already suffered through three DVTs, a life threatening condition.  Today, I made it my mission to raise awareness of this deadly health risk – one that causes over 100,000 deaths a year. The first time I ever heard of…

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Put Your Health First: Elaine’s Story

I am a married 39 year old mother of two.  A year ago my busy life was put on hold when I developed a blood clot in the renal vein of my left kidney.  I started feeling dull pain in my lower back at work, and I felt winded and tired.   I work full time…

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