Patient Stories

Living with Blood Clots and Clotting Disorders

Blood clots and genetic predispositions to clotting disorders can have serious lifelong consequences for patients… and for their families and friends. Collected here are the stories of those living with Thrombophilia. Click on the links below to read personal stories about coping with these conditions.

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Jennifer Gray is a professional meteorologist with NBC 6 in Miami. Jennifer was fortunate to survive pulmonary emboli in two lungs. Her life was saved by insisting that something was wrong and the advice she was being given by medical professionals could not be correct. Her persistence in demanding medical care paid off. “If someone would have told me a year ago that my birth control pills were killing me, I would have laughed.. Read Jennifer’s story.

Kim Gronholz’s Blood clot survival story. This is the story of a teacher who wants to alert people to the risks and signs and symptoms of blood clots, after her experience with a DVT and PE related to a new found thrombophilia, use of birth control pills, and recent prolonged travel, a mix of 3 risk factors for blood clots. Read Kim’s story.

David Henry discusses owning his coagulation therapy and taking control of his life through self testing. “Like many of you who are reading this, I am a Warfarin “lifer.” Also, like many of you, I have experienced the frequent delays and inconvenience of waiting at busy lab sites for the brief procedure resulting in my PT-INR ratios. As a busy professional, I felt a growing need to challenge…Read David’s story.

Lauren Hametz is a young woman who experienced DVT and PE, although she did not see her symptoms as serious because she saw herself as healthy, and was first told nothing was wrong… Read Lauren’s story.

Haley Hanson found out how off putting it is to have her blood clot symptoms ignored or dismissed by a doctor. Read Haley’s story.

Kimberly Hennings of Colorado shares her and her sister’s story of pulmonary embolism. Kim developed multiple PE’s post-surgery in November 2007.  Her diagnosis of PE was missed until it was too late. “In July, 2007, I was living as most mothers of young children do I followed the daily routine of long work days to financially provide for my family, lost in the rush of seemingly endless soccer practices, band recitals, doctor’s appointments and evening college courses. “Read Kimberly’s story.

Kristine Hinterkopf was an avid runner, so she felt as if blood clots could never happen to her. After running a marathon she noticed pain in her hip. The pain turned out to be a stress fracture that required surgery. Read Kristine’s story.

Kelly Hogan Tells her story about surviving a pulmonary embolism caused by a DVT in her leg. “A year ago today, I had no idea the curve balls 2009 would throw at me, and I would have never guessed they would involve a life-changing experience involving my health. You see, I’m the “healthiest person” all of my family, friends and colleagues know. I’m studying for my Master’s in nutrition, eat more than five servings of fruits and vegetables each day, shun anything processed or laced with saturated fats, rarely order takeout and run miles and miles almost every day.” Read Kelly’s story.

Steve HogmanSteve Hodgman was slow to seek care for his symptoms, even after urging by his wife and advice from a nurse, because he could not believe that any significant condition could happen, given his heretofore healthy life that included a 5-6 mile daily run. When he was found to have pulmonary emboli, he wrote a play to depict the seriousness of blood clots.  Read Steve’s Story.

More Patient Stories

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