PTS
Diagnosed with a DVT and May-Thurner Syndrome at 14: Madison and Nicole’s Story
As told by her mother Nicole. Our daughter Madison started high school on August 12, 2024, and was excited for the next chapter of her life. Two weeks later, she was in the pediatric intensive care unit with a massive blood clot that stretched from her abdomen down to her ankle. Her initial symptoms were…
Do All You Can to Prevent Clots During Travel: Misty’s Story
In July 2023, our 16-year-old daughter passed away. Later that year, a work trip offered a chance to travel to Hawaii, and I thought it would be a good break for us. We traveled from Virginia to Maui in December. The flights were very long, and I tried not to get out of my seat…
I’m So Happy to be Alive: William’s Story
I got home from work and found it very painful to walk up the stairs. It felt like I pulled my groin. The next day I was supposed to see my mom for her birthday, but I could not get out of bed because I couldn’t move my legs. My mom told me to call…
Life Is Different When You’re Living With PTS: Lisa’s Story
At the age of 20, two weeks after giving birth to my beautiful baby girl, I had extreme pain in my lower calf and could barely move. It was swollen, red, and hot to the touch, and heavy. I was frightened! I went to the hospital, where I was diagnosed with a DVT and hospitalized…
My Pain Was Ignored For Almost a Year: Caitlin’s Story
I was diagnosed with my clot in February 2022 after a period of immobility recovering from a torn hamstring. I was unaware of any underlying health conditions, and the blood clot was seemingly out of nowhere. The medical professionals where I was living at the time placed me on blood thinners and left me to…
Four DVTs Over the Years: Alejandra’s Story
In 2006, I was 31 years old, living in my home country of Venezuela, and 20 weeks pregnant with my first baby when I felt a pain like a knot in my left upper thigh. My mom suggested I keep my leg up the rest of the day and I could see my gynecologist in…
I Was Diagnosed with Factor V Leiden When It Was New: Lisa’s Story
In March 1989, I was a sophomore in college and on spring break in Florida when my left calf became extremely swollen and I could barely walk. I also had severe pain in between my shoulders and had shortness of breath. A friend took me to the ER, where I stayed for almost two weeks.…
Make Sure You Ask Questions Before Ingesting Prescribed Medications: Riddhi’s Story
I suffer from severe polycystic ovary syndrome (PCOS) and irregular cycles. My doctor prescribed birth control pills to regulate my cycle back in December 2021. I often felt cramps in my left leg, but I attributed them to dehydration or fatigue, given that I was a 20-year-old college student at the time. However, after my…
Do Not Ignore Anything, Even if You Feel Like it’s Nothing: Eilidh’s Story
A few days before my collapse, I felt a little out of breath when moving around. However, I had just got back from travelling around Thailand and I also had a sore throat, so I assumed I was just a little run down. I was wrong. On March 22, 2023, I walked down the stairs…
My Mental Health Has Suffered More Than My Physical Health: Denise’s Story
In May of 2019, I began experiencing a dry cough. It continued to progress to the point where I could no longer hold a conversation without coughing every four words or so. I went to a family doctor who brushed it off as adult-onset asthma and allergies, gave me a chest X-ray, and sent me…