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PE

Be Your Own Advocate: Jo Anna’s Story

My first pulmonary embolism was on August 15, 2015. I was on birth control for irregular cycles and began having pain in my lower right side, which I thought was a pulled muscle. A week after the symptoms, the pain was unbearable. I went to the ER and was diagnosed with a right lung pulmonary…

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If You Aren’t Happy With the Answers, Keep Pushing: Ria’s Story

In April 2023, I had a spontaneous seizure at work. I was taken to the hospital and stayed for 10 days. On day 8, I had a lumbar puncture (also known as a spinal tap) to try and find the cause of the seizure. The following day, I woke up with an intense, sharp, left-sided…

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I Suffer From Health Anxiety and PTSD Since This Ordeal: Kerry’s Story

In October 2017, I had a long day working behind my desk and had not gotten up or hydrated much. After about 10 hours, I headed straight to a volleyball game as I played in a league. Midway through the game, I experienced a sharp, painful cramp in my right calf that would not subside.…

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Adjusting to the New Normal Was the Most Difficult Part: Kate’s Story

I experienced my pulmonary embolism in September 2023. Our youngest son and I had taken our older children to school, and the day went on normally. I noticed that I was becoming easily winded while doing really simple activities. My heart rate was also high. After school, our middle child had soccer practice and sat…

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Hormone Replacement Therapy Likely Caused My Blood Clots: Janene’s Story

In November 2023, I had been experiencing calf pain for several weeks, which I assumed was a pulled muscle as I had recently started an exercise program. I also had a nagging cough which I assumed was a seasonal cold. By November 30, my entire leg had doubled in size, so I quickly went to…

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I Refuse to Be a Victim: Mickey’s Story

After returning home from a weekend of skiing in Breckenridge, Colorado, I woke up with low back pain and pain in my chest on a Monday morning. I didn’t think much of it because it was normal for me to be sore after exercise, and I’ve always struggled with exercise-induced asthma as a lifelong Colorado…

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This Has Completely Changed Everything: Andrea and Andre’s Story

Wednesday, January 18, 2023, will be a day I will never forget. It started as an ordinary day at home with my two children, Amelia, and Andre. My son Andre, who had just turned 3 a month before, had been sick for about a week. I had already taken him to the pediatrician just three…

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Advocating For Awareness Has Been Incredibly Rewarding: Dan’s Story

On July 31, 2021, after being misdiagnosed and sent home almost a week prior, I finally received a diagnosis that would forever change my life: sub-massive pulmonary emboli and pulmonary infarction. I call it “the back pain that saved my life.” My primary symptom was upper back tightness and discomfort, which I later learned was…

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Monitor Your Own Vitals: Jamie’s Story

It was June of 2023. I was five days postpartum when I started to get really erratic blood pressure readings. It would go from 177/206 to 123/79 within minutes, up and down like a roller coaster. I was also having palpitations and I remember telling the doctor later that I had a twinge of pain…

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My Lungs Felt Itchy: Jessica’s Story

In 2021 I was feeling healthier than I had in years because I spent the previous 10 months working out and eating better. On April 14, I had varicose veins treated in my right leg. Two weeks later, I had a follow-up where they did an ultrasound on the leg and released me to resume…

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