PE
Be Your Own Advocate: Jo Anna’s Story
My first pulmonary embolism was on August 15, 2015. I was on birth control for irregular cycles and began having pain in my lower right side, which I thought was a pulled muscle. A week after the symptoms, the pain was unbearable. I went to the ER and was diagnosed with a right lung pulmonary…
If You Aren’t Happy With the Answers, Keep Pushing: Ria’s Story
In April 2023, I had a spontaneous seizure at work. I was taken to the hospital and stayed for 10 days. On day 8, I had a lumbar puncture (also known as a spinal tap) to try and find the cause of the seizure. The following day, I woke up with an intense, sharp, left-sided…
I Suffer From Health Anxiety and PTSD Since This Ordeal: Kerry’s Story
In October 2017, I had a long day working behind my desk and had not gotten up or hydrated much. After about 10 hours, I headed straight to a volleyball game as I played in a league. Midway through the game, I experienced a sharp, painful cramp in my right calf that would not subside.…
Adjusting to the New Normal Was the Most Difficult Part: Kate’s Story
I experienced my pulmonary embolism in September 2023. Our youngest son and I had taken our older children to school, and the day went on normally. I noticed that I was becoming easily winded while doing really simple activities. My heart rate was also high. After school, our middle child had soccer practice and sat…
Hormone Replacement Therapy Likely Caused My Blood Clots: Janene’s Story
In November 2023, I had been experiencing calf pain for several weeks, which I assumed was a pulled muscle as I had recently started an exercise program. I also had a nagging cough which I assumed was a seasonal cold. By November 30, my entire leg had doubled in size, so I quickly went to…
I Refuse to Be a Victim: Mickey’s Story
After returning home from a weekend of skiing in Breckenridge, Colorado, I woke up with low back pain and pain in my chest on a Monday morning. I didn’t think much of it because it was normal for me to be sore after exercise, and I’ve always struggled with exercise-induced asthma as a lifelong Colorado…
This Has Completely Changed Everything: Andrea and Andre’s Story
Wednesday, January 18, 2023, will be a day I will never forget. It started as an ordinary day at home with my two children, Amelia, and Andre. My son Andre, who had just turned 3 a month before, had been sick for about a week. I had already taken him to the pediatrician just three…
Advocating For Awareness Has Been Incredibly Rewarding: Dan’s Story
On July 31, 2021, after being misdiagnosed and sent home almost a week prior, I finally received a diagnosis that would forever change my life: sub-massive pulmonary emboli and pulmonary infarction. I call it “the back pain that saved my life.” My primary symptom was upper back tightness and discomfort, which I later learned was…
Monitor Your Own Vitals: Jamie’s Story
It was June of 2023. I was five days postpartum when I started to get really erratic blood pressure readings. It would go from 177/206 to 123/79 within minutes, up and down like a roller coaster. I was also having palpitations and I remember telling the doctor later that I had a twinge of pain…
My Lungs Felt Itchy: Jessica’s Story
In 2021 I was feeling healthier than I had in years because I spent the previous 10 months working out and eating better. On April 14, I had varicose veins treated in my right leg. Two weeks later, I had a follow-up where they did an ultrasound on the leg and released me to resume…