Family history

I’m 30 years old and have a complicated medical history. As a teenager, I was diagnosed with fibromyalgia and Ehlers-Danlos syndrome, and today I manage more than 20 different health conditions. On April 20, 2021, I felt severe pain in my left leg. It was swollen, purple, and hot to the touch. I called my…

Two weeks after a 68-mile bike ride, I couldn’t straighten my leg, and my veins bulged. “It’s just a bruise,” the ER doctor said, looking at my leg. He dismissed it the same way that the sports doctor and physical therapists did. But weeks later, my leg looked blue with spider veins. I sent a…

On Christmas Day, 2017, I was on a flight home to Sydney. I sat in the window seat on the connecting flight from Dubai for 15 hours. A young couple sat beside me, lounging in their seats and sleeping with their legs stretched out. Luckily, I didn’t need the toilet. About 30 minutes before the…

I was living in Arizona and going to school. I was in a very minor car accident where my knee hit the dashboard. It was bruised, and about two weeks later, I started feeling a painful cramp behind my knee, similar to a charley horse. When I told my primary care doctor, he ordered an…

In my twenties, I developed a pain in my calf that was extremely uncomfortable. I couldn’t put my foot on the ground to walk. My dad had DVTs a few years before and told me to go to the hospital. At the hospital, I was given an anticoagulant and sent for a scan the next…

In May 2021, I was experiencing extreme perimenopausal hot flashes, and hormone replacement therapy wasn’t helping, so I started estrogen-based birth control. Things were improving until one day, I lost my breath while vacuuming. I sat down and thought I might have caught Covid, but I started feeling better, so I got back up, but…

I’m a three-time deep vein thrombosis survivor. My story starts during my first pregnancy. I experienced bleeding during the first and second trimesters and the baby was same for gestational age. I tried to get the obstetrician to look into it, to no avail. For my second pregnancy, I had emergency C-section. The baby’s heartbeat…

As told by her sister, Heather. I experienced a blood clot. I survived. My sister didn’t. Around Thanksgiving of 2020, my 18-year-old sister Faith began complaining of chest pain and shortness of breath, and then she passed out at work. Over the next three days, my parents took her to the doctor three times, where…

On January 13, 2025, I was diagnosed with an unprovoked pulmonary embolism lodged in the main artery on the right side of my lung, blocking and restricting blood flow. I also have right-sided heart strain due to the clot. Just before Christmas, my right leg behind my knee became swollen and extremely painful. I have…

As told by Finley’s mother, Veronica Finley had been diagnosed with factor V Leiden homozygous in May 2023. I asked for him to be tested due to family history. No one explained his diagnosis to us, nor was it given any credence when brought up at doctor appointments. In June of 2024, in the height…