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Patient Stories

After My Sister’s Death, Our Fears Now Shift to Our Children: Kimberly Story

Kimberly Hennings of Colorado shares her and her sister’s story of pulmonary embolism.  Kim developed multiple PE’s post-surgery in November 2007.  She later found out she carries prothrombin G20210A genetic thrombophilia, as do all of her family members except her mother.  Tragically, her sister Angela died of a PE at age 40 in July 2008. …

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Owning My Coagulation Health Management

Like many of you who are reading this, I am a Warfarin “lifer.” Also, like many of you, I have experienced the frequent delays and inconvenience of waiting at busy lab sites for the brief procedure resulting in my PT-INR ratios. As a busy professional, I felt a growing need to challenge this “traditional” approach.…

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MTS Has Changed Me: Jassmin’s Story

My name is Jassmin Robinson and I am a 14 year old young lady from Ohio.  I was correctly diagnosed with May Thurner syndrome on January 1, 2008.   Another name for this syndrome is iliac vein compression syndrome, because the left iliac vein in the groin is compressed by the right iliac artery. This increases…

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Giving Back After My DVT: Karen’s Story

In July of 2004, I was diagnosed with a DVT in my left leg. I had experienced swelling and pain in my left calf, ankle and foot, in addition to fatigue. Until I was diagnosed however, I didn’t have the faintest idea what was wrong with me! My mother had experienced two PE’s years ago. I…

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A Clot From My Belly Button to Knee: Jane’s Story

It’s around 4:00 AM, and I’m still awake.  Why?  Because I am 20 years old and want to feel normal again and I can’t make what I am dealing with go any faster. My story started awhile ago.  Unknowingly, I began using a well known brand of birth control patch that was so prominent that…

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Proudly Wearing Compression Stockings: Katie’s Story

Katie was a junior in high school in 2007. Her periods were irregular and her doctor suggested that she begin taking birth control pill to regulate them.  We told her physician that her father had been diagnosed with factor V Leiden after a tiny stroke at age 39. We were told that this constituted a…

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Having a PE/DVT After a Leg Fracture: David’s Story

By: David Bock September  2009 I was seriously injured when I slipped and fell in Upland, California on March 8, 2008, while visiting there from my home in Arizona.  I was rushed to the emergency room of the nearest hospital where the ER doctor diagnosed fractures of my left tibia and fibula in my lower…

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Bullying Led to Blood Clots: Jessica’s Story

Jessica Stanley experienced physical trauma after a bullying incident in high school, from which she developed blood clots in her left leg and lungs. After taking a year off, she was proud to finish her senior year, and is now a blood clot survivor in her early 20s. My name is Jessica Stanley. Six years…

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Blood Clot Awareness is my Platform: Lisa’s Story

Lisa Thomas is Mrs. Rosemount and is a contestant in the Mrs. Minnesota pageant. She is using her pageant platform to promote awareness about risk of blood clots, because she is a survivor of a deep vein thrombosis (DVT) and wants to use the pageant microphone to help Stop The Clot. My name is Lisa…

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Don’t Let Anyone Dismiss Your Symptoms: Haley’s Story

Haley, a nursing student, found out what it’s like to be on the other side of the bed rail as well as how annoying it is to have her blood clot symptoms ignored or dismissed by a doctor. I am a 21 year old female who was diagnosed with deep vein thrombosis (DVT) and pulmonary…

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