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It’s Common to be Misdiagnosed: Molly’s Story

In late September 2023, my left calf started aching mysteriously. The pain was radiating up and down my leg so I thought maybe it was a pinched nerve. It was getting hard to walk, so I did an online urgent care visit. I was diagnosed with muscle strain and told to wrap it, take ibuprofen…

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Diagnosed With Five DVTs After a Scooter Accident: Xio’s Story

In March 2011, I had a C-section and developed a superficial clot in my left leg, My treatment was compression socks and I felt better after a week. Years later, on March 30, 2024, I had a fall from an electric scooter. All my weight fell on my left leg, but somehow, I got up…

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My Doctor Dismissed My Leg Pain as Sciatica: Ashley’s Story

At 31 weeks pregnant, I was getting ready for the arrival of my baby when I started experiencing extreme pain in my left leg. I remember going to my baby shower and barely being able to walk. This was very concerning, so the next day, I called my OB/GYN and explained my symptoms. Unfortunately, she…

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My Road to Recovery is a Lifetime Journey: Vanessa’s Story

In September 2022, a couple of weeks after undergoing an emergency appendectomy, I was woken up by an intense pain in my knee. It lasted a few minutes and then I went back to sleep. A few days later, the pain came back and spread to my thigh, and I could not put weight on…

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Stay Resilient, Listen to Your Body and Advocate for Yourself: Lauren’s Story

In the fall of 2023, I was a healthy 21-year-old college senior busy with graduate school applications and interviews. I was working out multiple days a week and going to class, trying to enjoy my last year of college. One night, I went bowling for the first time in a while and woke up the…

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Use This As Your Reason to Live: Tilly’s Story

Tilly created a documentary on living with the aftermath of deep vein thrombosis. Watch it here.  It began with excruciating back pain and shooting pains up my left leg. I felt unable to walk. The week that I noticed my first symptoms, I was back and forth to urgent care and the doctors. They kept…

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I Was Blown Away By the PTSD I Felt: Donna’s Story

On Christmas Eve 2023, I slipped on ice and broke my kneecap. I spent eight weeks in a splint and kept my leg elevated. Two weeks later, I experienced shortness of breath and chest pain suddenly. I went to the ER and was diagnosed with a submassive bilateral PE with right heart strain. I spent…

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I Developed PTSD From This Experience: Autumn’s Story

In September 2024, I went on FMLA and short-term disability due to severe pain in my leg that was assumed to be a hamstring and calf cramp issue. Less than two months later, on Nov. 14, 2024, I had the biggest scare of my life. I woke up that morning and went to let my…

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We Need More Voices, But Too Many of Us Aren’t Lucky Enough to Share Our Stories: Kyra’s Story

When I gave birth to my son, I was so excited to be a parent. But I began having headaches that were not normal. In the hospital, I was given medication to clot my blood because of slightly more than average blood loss. I was also given extra blood pressure checks because my blood pressure…

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If Something Feels Off, Get It Checked Out: Emily’s Story

When I went in for hip surgery to repair my labrum — a ring of cartilage in the hip that stabilizes and cushions the hip joint — I was excited. After two years of limited mobility, I couldn’t wait to get back to the active lifestyle I loved. I’d likely injured myself training for triathlons,…

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