Mental health

My cousin, who was 22, died of a pulmonary embolism when I was 10 years old. At autopsy, she was found to have protein C resistance, explained by the factor V Leiden mutation. As this mutation is genetic, the whole family was tested. I was found to be a carrier of this mutation, and I…

I had a pulmonary embolism in the fall of 2016. I was just 24 years old and was an avid runner/marathoner. I had completed about 10 marathons, including the iconic Boston Marathon.   At the time, I didn’t really know what a blood clot was, and I completely missed the signs of a blood clot…

In January 2021, I woke up in the middle of a Sunday night feeling like I needed to put ice water on my body. As I carried the glass of ice water back to bed, I suddenly found myself struggling to make it to the couch. What seemed like minutes later, I woke up with…

In August 2020, I had severe left calf cramping, but I didn’t think much of it. The next morning, I awoke to a sensation going up my leg. I felt an explosion in my chest and could not catch my breath. I figured it was anxiety until the next day, when I couldn’t handle the…

I had an injury to my forearm in June 2022. Less than a week later, I started getting severe chest pains. I was taken to the hospital with c-reactive protein test (CRP) markers of 93 and was sent home with antibiotics.   A week later, I experienced the same pain, but worse. This time a CT…

I started to get sick very frequently around March 2019. I was having terrible colds and coughing all of the time. A few months later, I started having difficulty climbing stairs and couldn’t even walk without developing shortness of breath and feeling like I was having a heart attack.    I went to my primary care doctor…

In 1983, I began experiencing pain in my side, shortness of breath and coughing up blood. At the ER, I was diagnosed with pleurisy, which is inflammation of the tissues that line the lungs and chest cavity. I was only 17 years old. Two weeks later, I began having pain in my left groin and…

I am a 39-year-old Native American. I have had 23 pulmonary emboli (PE) and 31 incidents of deep vein thrombosis (DVT) starting at age 22, caused by the factor V Leiden mutation. I also have congenital protein C and S deficiencies.   Nurses say I’m a miracle and call me a medical anomaly. Doctors ask…

When I had a deep vein thrombosis (DVT) in my left leg, I was a 19-year-old college freshman who had never heard of blood clots before. I assumed I’d broken my leg and hobbled to two classes before going to the hospital. The hospital was a rural one with only four beds in the ER,…

In 2017, at 21 years old, I was undergoing my third surgery on my left knee after I had torn my ACL and meniscus playing college basketball. I was back on the court a few short weeks later, but felt that my hamstring was unusually tight. This didn’t seem right to me, so I decided…