NBCA orchestrates a number of important awareness programs that are ongoing, and we are always working on new ideas to expand and improve our outreach efforts. Chief among our awareness programs are:
NBCA’s widely acclaimed public awareness campaign — called Stop the Clot, Spread the Word™ — which stems from NBCA’s five-year cooperative agreement or collaboration with the Centers for Disease Control and Prevention, involves a dynamic online or digital media campaign that reaches tens of millions of people each year with information about blood clot risks and blood clot signs and symptoms.
This campaign, which rolled out in March 2015 in recognition of Blood Clot Awareness Month, is made possible through funding provided to the National Blood Clot Alliance by the Centers for Disease Control and Prevention under Cooperative Agreement number 1U27DD001153.
In Year 2 and Year 3 of this program, NBCA and CDC efforts have been focused on DVT/PE risks associated with hospitalization, pregnancy, and oncology.
In August 2016, NBCA rolled out the arm of the program focused on VTE risks associated with hospitalization and surgery, as a special prong of this Stop the Clot, Spread the Word™ initiative. You can read more about this aspect of the program here, and view all of the new collaterals created as a result of this special focus here.
Stay tuned for more information about this crucial public health effort.
For more information about this program, please contact NBCA’s Director of Communications & Health Marketing here.
NBCA has a unique Web-based information portal, focused singularly on the risk of blood clots among women, particularly women of child bearing age who are making important choices about birth control.
Working in partnership with the Alexandra L. Rowan Memorial Foundation, this program focuses squarely on the information needs of women.
This important program was unveiled in August 2015. You can learn more about the program here. Or, visit the program Web portal at womenandbloodclots.org. The campaign also features a multi-part video series you can view here, as well as a striking companion infographic you can see here.
In 2016, NBCA expanded this program with the creation of a suite of important resources, including a risk assessment survey, focused on the blood clot risks associated with estrogen-based birth control. You can view these important resources here.
Also, NBCA’s work with the Rowan Foundation gave rise to a new online support community, powered by Inspire. Launched as a safe and supportive online community where women affected by DVT/PE could share experiences and connect with others who face similar challenges, the site quickly grew to reflect the diverse spectrum of individuals — men and women, young and old — affected by DVT/PE. Today, this peer-to-peer online discussion community boasts more than 1,300 members and continues to grow daily. You can join the conversation here: Sign Up for Free.
NBCA’s Women & Blood Clots program is funded by a generous grant from the Rowan Foundation. In 2017, NBCA plans to focus on the specific information needs of young woman making crucial choices about family planning and birth control, by delivering this life-saving information directly into the hands of the women who need it. NBCA will be conducting an outreach program focused squarely on university based health centers, and coordinate other outreach efforts, to achieve this goal. For more information about this program, please contact NBCA’s Direction of Communications & Health Marketing here.
HIP AND KNEE REPLACEMENT
Given the increased risk associated with hip and knee replacement surgeries and blood clots, NBCA has created an online toolkit of materials to address the specific information needs of people at risk for blood clots due to hip and/or knee replacement surgery.
Click here to view this new online educational program: Stop the Clot® Patient Toolkit for Knee and Hip Replacement Patients, which includes important downloadable educational tools.
This program is made possible by sponsorship support from Janssen Pharmaceuticals. Inc.
NBCA works on a spectrum of additional fronts, including:
Ongoing development of a stronger, more engaged online community through daily offerings of social media content via Twitter, Facebook, Instagram, Pinterest and YouTube, as well as NBCA’s Stop the Clot Online Support Group & Discussion Community.
Ongoing expansion and usability of its website, by continuing to improve the architecture of information we provide here, and providing a Spanish language translation function of materials housed on the site.
Publishing our newly re-formatted e-Newsletter on a monthly basis, and improving our ability to share timely and topical information with our constituents on a more regular basis. To get our e-Newsletter delivered to your inbox, sign-up here.
Continued support of the many incredible Stop the Clot® athletes who inspire us daily as they run, walk, bike, and tread to build awareness and raise funds for NBCA. Learn more about Team Stop the Clot and the TCS New York City Marathon here. Also, check out our events schedule here.
Working with the organization’s Medical & Scientific Advisory Board (MASAB) to help support advances in the diagnosis and treatment of DVT/PE and its complications. Learn more about the prestigious individuals who serve on MASAB here. MASAB information.
Being “on call” for people who contact us by phone and e-mail looking for information about blood clots. NBCA cannot provide medical advice, but we’re frequently able to help by sharing resources and information that enable people to be their own best advocates with their doctors.