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Misdiagnosed

I’m Grateful to be Alive and Share My Testimony: Roxanne’s Story

There was a tingling sensation in my right leg with noticeable swelling, while pain developed in my chest and right side when I took deep breaths. I work as a hairstylist, so tired feet and legs come as no surprise, but this was different. I went to urgent care, and they recommended I go to…

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I’m Living My Days to the Fullest: Elizabeth’s Story

In my twenties, I developed a pain in my calf that was extremely uncomfortable. I couldn’t put my foot on the ground to walk. My dad had DVTs a few years before and told me to go to the hospital. At the hospital, I was given an anticoagulant and sent for a scan the next…

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I’m Hoping For a Better Outcome: Saru’s Story

I had my blood first clot at 26. I visited a doctor, but they couldn’t diagnose it, saying it would fade with time. After two months, it did fade. At 28, when I was newly married and planning a baby, I got red bumps on my calves. I tried lymphatic exercises for two months, but…

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Don’t Accept a Diagnosis if Your Intuition Tells You Different: Jasmine’s Story

When I was 32 years old, I experienced terrible pain behind my knee for weeks. My doctor said it’s from standing, and I need physical therapy. I did that, but the pain persisted. Eventually, I went to a vascular surgeon who did vein stripping surgery. Seven days post-op, I felt sick, like the flu, but…

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I Feel Lucky to Have Gotten a Second Chance at Living: Kara’s Story

In May 2021, I was experiencing extreme perimenopausal hot flashes, and hormone replacement therapy wasn’t helping, so I started estrogen-based birth control. Things were improving until one day, I lost my breath while vacuuming. I sat down and thought I might have caught Covid, but I started feeling better, so I got back up, but…

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I Listened to My Body and Begged For Answers: Carrie’s Story

On April 4, 2025, I awoke around 4:30 a.m. with the worst charley horse under my left breast, wrapping around to my back and up my arm. I went to the emergency room and was diagnosed with abdominal pain and sent home with naproxen. Two days later, I returned to the ER with worsening pain…

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This Experience Has Instilled a Deep Sense of Gratitude: Karla’s Story

On October 29, 2024, I began experiencing persistent pain in my right calf. The discomfort was significant enough that, five days later, I drove myself to the nearest hospital. Unfortunately, no blood work was conducted, and the ultrasound performed on my leg was brief and inconclusive. I was diagnosed with a muscle cramp and advised…

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We Hope Jason’s Story Saves Lives

I’m Jason Armitage’s mother, Faye. I’m writing this because he is severely disabled: paralyzed from the nose down and speech impaired. Blood clots in young people often get misdiagnosed and symptoms are routinely dismissed, as was the case when we visited the ER after a soccer game with then-7-year-old Jason. He had collided …

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Listening to Your Body Could Save Your Life: Kamisha’s Story

I’ve been living with DVTs and PEs since the age of 15 when my calf pain was misdiagnosed as arthritis. I’ve never taken birth control and, to my knowledge, there is no family history of clotting disorders. I’m now 46, and honestly, I’ve lost count of how many blood clots I’ve had—including a saddle PE.…

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I Had to Learn to Trust That the Medication is Working: Kacey’s Story

I took oral birth control starting at age 18 until 33, when I got pregnant. I delivered twin boys by C- section in May 2024 and resumed taking the same birth control shortly after. In September 2024, I noticed my left leg was swollen and began turning a dark red/purple color. I went to the hospital…

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