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UPDATE – Thrombosis Has Deeply Impacted My Family: Gerry’s Story

In February 2023, Gerry shared his family’s serious challenges with blood clots. He’s now updating it to reflect significant new results from the genetic research project his family is doing with Yale Smilow Cancer Center. Gerry’s presented his family’s story to five Senate/House committee staff as part of Capitol Hill Day on March 6, 2024…

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Recognize the Signs of a Blood Clot: Othello’s Story

As told by his wife Tonia. On July 20, 2017, my husband Othello died from two big blood clots in both lungs (pulmonary emboli). We went to the hospital thinking he had developed adult asthma because his oxygen was lower and he had shortness of breath. The doctor advised that Othello would have to be…

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Blood Clots Kicked Me When I Was Already Down: James’ Story

I woke up one morning in the summer of 2011 with nausea and pain in the left side of my torso/abdomen. At first, I wrote it off as a stomach bug and called in sick at work. After a couple of days, I was feeling worse so went to an urgent care clinic. The doctor…

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I Felt Like I Was Having a Heart Attack: Andrew’s Story

For over a month and a half, I had excruciating, indescribable pain in my leg. I was given lab tests, but doctors couldn’t detect anything. My PCP and the ER continued to give me steroids and pain medication, stating it must be coming from my back, which made no sense based on the pain and…

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I Had Never Heard of DVT/PE: Greg’s Story

As a former professional baseball pitcher, I have always been active. I continued my workouts over the years and tried to stay healthy. But my pride as an athlete in pushing through pain goes way back to my playing days. I even pitched seven innings with a fractured leg before I knew it was injured.…

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Make Your Health a Priority: Matt’s Story

I had my first deep vein thrombosis when I was 18. I was training for the military and was very active, doing lots of weightlifting and running. One day, I had extreme pain and swelling in my groin and right leg. Even with those symptoms, I was stubborn and waited four days before getting it…

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I Have No Idea How Anyone Could Get Through This Alone: Chris’ Story

I am a trail runner, CrossFitter, MMA/jiu jitsu player, and mountaineer. I trained hard, ate clean, and slept enough so that I could maximize both my performance and longevity.  I was a hybrid athlete balancing strength and endurance. Then I twisted my knee at jiu jitsu camp. I needed a meniscus repair, which caused massive…

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A PE Can Be Life-Changing: Aden’s Story

I woke at about 3 a.m. with the most intense stabbing pain in the right-hand side of my chest, towards the back. I assumed that I had slept funny and that I had simply trapped a nerve or something. The pain was unbelievable, though. I took acetaminophen but it did nothing. At 8 a.m., the…

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I Had Zero Risk Factors: Thomas’ Story

I woke up in the middle of the night and could barely breathe, so I booked an appointment with my local urgent care for the next morning. They took an X-ray of my lungs for pneumonia, but it was clear, so I was sent home. A couple weeks later, I got a sharp pain in…

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Each Moment, I Feel Like I Just Ran a Marathon: Brett’s Story

I am lucky to be alive. On a recent Wednesday morning, I went to the emergency room with chest pains and shortness of breath. After many tests and a CT scan, they said I had a blood clot in my lungs, another pulmonary embolism. This was my third time. The doctor said that one out…

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