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After a Blood Clot, Life Has Updated Rules: Jeff’s Story

About nine months ago, I was diagnosed with a DVT from my upper thigh down to my calf. The diagnosis was lupus anticoagulant, an auto immune disorder that requires me to be on blood thinners for life. I am an avid cyclist, doing up to 100 miles per week. At first my hematologist told me…

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I Collapsed In Front of My Wife: Steve’s Story

We had been traveling throughout the Great Smoky Mountains looking for our forever home. We got back home to Florida, and on Sept. 3, 2020 at 10 p.m. I walked less than 100 feet to put the garbage on the curb. I looked up at the night stars and thought about how God did such…

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Don’t Wait to Get Help: Jim’s Story

I had been going about my normal routine at work and home. I awoke one day with cold symptoms. The next day was a tad worse, so I got some cold medicine. I went to work as usual and was carrying a ladder when — boom — I felt dizzy and winded and I was…

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Two Blood Clots 10 Years Apart: Priyansh’s Story

I was diagnosed with a pulmonary embolism in 2013 as a side effect of steroids I was taking for nephrotic syndrome, a kidney disorder. I was on warfarin for two years until my doctor advised me to stop taking it. In March 2023, I had sudden pain in my left leg that was the worst…

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Finally Making Gains: Gerry’s Story

I’m a survivor of two pulmonary emboli. I’m finally making gains to restore “normal life” after years of small gains and constant setbacks. Before my pulmonary emboli in January 2016, I was healthy and ran lots of races. I thought it was an isolated incident and I wouldn’t get another one. It’s strange how life…

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I Had No Idea That the Pain in my Knee Was a Warning Sign: Mark’s Story

About a week after having an arthroscopy on my left knee, I was icing the top of the knee and commented to my wife that I really should be icing the back of my knee. What I did not know at the time was that the back of the knee hurt because I was passing…

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My Diagnosis Was Cortical Venous Thrombosis in the Vein of Labbe: Oscar’s Story

My blood clot experience started with an intense fever and headache that lasted five days before I was hospitalized. On July 26, 2023, I was leading a work call when I suddenly became unable to pronounce the words on my computer screen. My girlfriend and our housemate took me to the emergency room, and as…

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It Started as Leg Pain: Rusty’s Story

It started as a sharp pain in my leg when I walked. I thought it was from my shoes, or maybe I had bruised my foot at some point. After about a month of these symptoms, my other leg started to swell and turn red. My wife, who is a nurse, and my doctor both…

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I Was Told it Was Just Inflammation: Alphonso’s Story

I am a 48-year-old male and in March 2023, I was diagnosed with a blood clot spanning from my lower right calf up to the pelvic area.   This was the result of a meniscus procedure I had done on my right knee approximately four weeks earlier. The first symptoms I experienced were tightness, swelling,…

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We Lost Our Son at the Age of 20: Adam’s Story

As told by his mother, Jenifer. On Dec. 3, 2020, I took my 18-year-old son, Adam, to the ER. He had severe back and leg pain, and his leg was swollen and purple. I thought that it was a pinched nerve or maybe a kidney infection.    Doctors discovered a massive clot in his left…

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