Gaslighting
Blood Clots are Invisible, But We Are Not: Maarib’s Story
I had my first pulmonary embolism in 2021 and my second PE along with deep vein thrombosis in 2025. The first time around, I experienced sudden chest tightness, shortness of breath, and coughing up blood. The second time, I had woken up to severe calf pain. Both times, my symptoms were constantly invalidated by doctors…
I’m So Happy to be Alive: William’s Story
I got home from work and found it very painful to walk up the stairs. It felt like I pulled my groin. The next day I was supposed to see my mom for her birthday, but I could not get out of bed because I couldn’t move my legs. My mom told me to call…
Listening to Your Body Could Save Your Life: Kamisha’s Story
I’ve been living with DVTs and PEs since the age of 15 when my calf pain was misdiagnosed as arthritis. I’ve never taken birth control and, to my knowledge, there is no family history of clotting disorders. I’m now 46, and honestly, I’ve lost count of how many blood clots I’ve had—including a saddle PE.…
I Had to Learn to Trust That the Medication is Working: Kacey’s Story
I took oral birth control starting at age 18 until 33, when I got pregnant. I delivered twin boys by C- section in May 2024 and resumed taking the same birth control shortly after. In September 2024, I noticed my left leg was swollen and began turning a dark red/purple color. I went to the hospital…
Never Ignore What Your Body Is Telling You: Annastasia’s Story
On May 6, 2024, I was admitted to the hospital to give birth to my little rainbow baby. I had planned a natural birth, but complications meant an emergency C-section. I was terrified and unprepared. Surgery went well, but hours later I developed a severe headache. My doctors said it could be spinal leakage. I…
This Made Me a Better Person Because I Value My Life: Julia’s Story
I had suffered with a sore knee for quite some time and eventually ended up needing keyhole surgery on it. I was on the combined pill at the time and was not told of any clotting risk factors before my surgery. The operation was successful, and I went home with crutches, thinking that my knee…
Fight For Yourself Until You Get an Answer That Makes Sense: Kristina’s Story
My story began in late 2018. I was on oral birth control for a few weeks in October 2018 and stopped as it caused mental health symptoms. A short time later, I experienced sudden increases in heart rate every time I got up to move, and progressed to sudden shortness of breath and a feeling…
I Suspected a Clot, But I Was Told It Was a Pulled Muscle: Paula’s Story
I went to the emergency room last year over what I thought was a blood clot in my leg. My D-dimer was elevated, but they still told me it was a pulled muscle and sent me home. So when I woke up in June 2024 and had the same pain in the same leg, I…
I Was Dismissed and Sent Home: Autumn’s Story
I went to the hospital in June 2022 with chest and back pain. The doctor told me I strained something playing softball and needed to lose weight. I was very active in high school and played four varsity sports as a starter. In December 2022, I went back to the ER, where the same doctor…
This Experience Changed the Course of My Life: Libby’s Story
When I was 18, I was diagnosed with multiple bilateral pulmonary emboli. I was an active young adult, attending university and playing volleyball for my school. I woke up one night not being able to catch my breath and felt crazy amounts of pain in my ribs, upper right quadrant of my abdomen, and back.…