Gaslighting

Two weeks after a 68-mile bike ride, I couldn’t straighten my leg, and my veins bulged. “It’s just a bruise,” the ER doctor said, looking at my leg. He dismissed it the same way that the sports doctor and physical therapists did. But weeks later, my leg looked blue with spider veins. I sent a…

In 2014, while in podiatry school, I went to the student health center because I was short of breath and was coughing up blood. The nurse practitioner diagnosed me with bronchitis. Less than two weeks later, I learned the truth — I had a saddle pulmonary embolism, which means a large blood clot was blocking…

Five days before everything came to light, I sat in a rheumatologist’s office explaining my concerns. Instead of investigating, she dismissed me, chalking it all up to my Ehlers-Danlos syndrome. My after-visit summary simply said to “wear spandex-type garments,” and there was no more that rheumatology could do for me. I left feeling unheard and…

After two long months of debilitating headaches and vision problems, I was finally diagnosed in July 2025 with a cerebral venous sinus thrombosis (CVST), a rare and dangerous clot in the veins that drain the brain, at 24 years old. My first ER trip was in May, when I showed up with stabbing head, neck,…

On October 27, 2024, I was diagnosed with cerebral venous sinus thrombosis (CVST). There was a large blood clot taking up the transverse and sigmoid portion of the venous sinus of my brain. I am still dealing with some neurological deficits. My symptoms started while I was working. Looking at the computer screen, numbers and…

My story starts on a fun family trip to New York City. The first day after our flight, I woke up with the most painful muscle cramp in my left calf. I stretched and walked it off throughout the day, and the pain subsided for a few hours. I went three more days of stretching…

I was living in Arizona and going to school. I was in a very minor car accident where my knee hit the dashboard. It was bruised, and about two weeks later, I started feeling a painful cramp behind my knee, similar to a charley horse. When I told my primary care doctor, he ordered an…

There was a tingling sensation in my right leg with noticeable swelling, while pain developed in my chest and right side when I took deep breaths. I work as a hairstylist, so tired feet and legs come as no surprise, but this was different. I went to urgent care, and they recommended I go to…

In my twenties, I developed a pain in my calf that was extremely uncomfortable. I couldn’t put my foot on the ground to walk. My dad had DVTs a few years before and told me to go to the hospital. At the hospital, I was given an anticoagulant and sent for a scan the next…

In February of 2020, I had recently gotten married, and the world was about to shut down. I developed unbearable chest pain and shortness of breath that I ignored for a week before finally going to the emergency room. It turned out that I had a massive pulmonary embolism. I was in shock, wondering how…