Patient Stories
I’m Hoping For a Better Outcome: Saru’s Story
I had my blood first clot at 26. I visited a doctor, but they couldn’t diagnose it, saying it would fade with time. After two months, it did fade. At 28, when I was newly married and planning a baby, I got red bumps on my calves. I tried lymphatic exercises for two months, but…
You’re Not a Prisoner of this Experience: Rhonda’s Story
At 39, I walked into a local emergency room with what I later learned were textbook symptoms of deep vein thrombosis (DVT) and pulmonary embolism (PE). I was late into the first trimester of pregnancy, and my left leg had been bothering me for several days—starting as a crampy, achy feeling and quickly turning into…
Don’t Accept a Diagnosis if Your Intuition Tells You Different: Jasmine’s Story
When I was 32 years old, I experienced terrible pain behind my knee for weeks. My doctor said it’s from standing, and I need physical therapy. I did that, but the pain persisted. Eventually, I went to a vascular surgeon who did vein stripping surgery. Seven days post-op, I felt sick, like the flu, but…
I Feel Lucky to Have Gotten a Second Chance at Living: Kara’s Story
In May 2021, I was experiencing extreme perimenopausal hot flashes, and hormone replacement therapy wasn’t helping, so I started estrogen-based birth control. Things were improving until one day, I lost my breath while vacuuming. I sat down and thought I might have caught Covid, but I started feeling better, so I got back up, but…
I Still Deal With PTSD From Thinking I Could Have Left My Children Motherless: Victoria’s Story
Towards the end of my fourth pregnancy, I felt many random aches and pains. My loved ones would write it off, saying it was likely due to being pregnant with my first son. The day after a wedding, I told my doctor I woke up with a terrible charley horse going down my leg. She…
Diagnosed with a DVT and May-Thurner Syndrome at 14: Madison and Nicole’s Story
As told by her mother Nicole. Our daughter Madison started high school on August 12, 2024, and was excited for the next chapter of her life. Two weeks later, she was in the pediatric intensive care unit with a massive blood clot that stretched from her abdomen down to her ankle. Her initial symptoms were…
Do All You Can to Prevent Clots During Travel: Misty’s Story
In July 2023, our 16-year-old daughter passed away. Later that year, a work trip offered a chance to travel to Hawaii, and I thought it would be a good break for us. We traveled from Virginia to Maui in December. The flights were very long, and I tried not to get out of my seat…
I Had Constant Leg Pain That I Mistook for Soreness After the Gym: Alexia’s Story
On March 14, two months before I was to get married, I fell off my front porch steps and thought nothing of it. I went to work and walked normally for eight hours. In the last 30 minutes of my workday, I started experiencing extreme pain in my left foot. I went to the ER,…
I Beat Astronomical Odds: Anita’s Story
I’ve had two unprovoked DVTs, one in 2006 and one and 2022. Both times I somehow avoided getting a pulmonary embolism (PE). In the first incident, I had cramps in my calves and edema/swelling in my legs for days. I decided to go to the doctor, and he pressed hard on my leg, which left…
Living With Blood Clots Has Left Me Feeling Isolated and Misunderstood: Kevin’s Story
Not long ago, I faced a medical nightmare that nearly ended my life. It wasn’t just one issue — it was a total breakdown of my body from the inside out. It started with unbearable chest pain, shortness of breath, and intense abdominal pressure. I went to three different hospitals before I was treated. The…
