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I Had to Learn to Trust That the Medication is Working: Kacey’s Story
I took oral birth control starting at age 18 until 33, when I got pregnant. I delivered twin boys by C- section in May 2024 and resumed taking the same birth control shortly after. In September 2024, I noticed my left leg was swollen and began turning a dark red/purple color. I went to the hospital…
Leg Pain Was Mistaken For an Injury: Karlie and Celina’s Story
As told by Karlie’s mother, Celina. Last June, my 17-year-old daughter Karlie mentioned pain in her left leg. She was a dancer, and dancers always have pain: a pulled muscle, a pinched nerve, or sciatica. The pain increased and moved into her groin area. We treated it as the internet said: heat, ice, and elevate.…
I Waited Until the Pain Was Unbearable: Taylor’s Story
It started on a Tuesday with mild lower back pain. I assumed that I’d strained something somehow. By Wednesday, the pain was slightly worse, and I felt weak, short of breath, and dizzy when standing—something definitely wasn’t right. By Friday, the pain spread to my left groin and down my left thigh. I convinced myself…
This Made Me a Better Person Because I Value My Life: Julia’s Story
I had suffered with a sore knee for quite some time and eventually ended up needing keyhole surgery on it. I was on the combined pill at the time and was not told of any clotting risk factors before my surgery. The operation was successful, and I went home with crutches, thinking that my knee…
Fight For Yourself Until You Get an Answer That Makes Sense: Kristina’s Story
My story began in late 2018. I was on oral birth control for a few weeks in October 2018 and stopped as it caused mental health symptoms. A short time later, I experienced sudden increases in heart rate every time I got up to move, and progressed to sudden shortness of breath and a feeling…
Her Life Was Just Beginning, Then It Ended: Faith and Heather’s Story
As told by her sister, Heather. I experienced a blood clot. I survived. My sister didn’t. Around Thanksgiving of 2020, my 18-year-old sister Faith began complaining of chest pain and shortness of breath, and then she passed out at work. Over the next three days, my parents took her to the doctor three times, where…
I’m Hyper-Vigilant Regarding My Body: Alison’s Story
On January 13, 2025, I was diagnosed with an unprovoked pulmonary embolism lodged in the main artery on the right side of my lung, blocking and restricting blood flow. I also have right-sided heart strain due to the clot. Just before Christmas, my right leg behind my knee became swollen and extremely painful. I have…
I’m More Present and More Grateful: Brandon’s Story
Watch a video of Brandon’s story: I had my first blood clot when I was 29. It started as a subtle cramp in my left calf—nothing alarming at first—but it slowly got worse, even with icing and massaging. When I woke up one morning and couldn’t put any weight on it, I knew something was…
Awareness Could Have Saved My Sister’s Life: Brenda and Vanessa’s Story
As told by her sister, Vanessa Brenda passed away on January 10, 2025, at 36. After almost three months of waiting, our family finally learned the cause of her death: pulmonary embolism due to lower extremity deep vein thrombosis. I’d heard of this condition before but never thought someone her age could be affected. The…
Symptoms Were Misdiagnosed as Asthma: Paul and Denise’s Story
As told by Paul’s mother, Denise. We wish we had known the symptoms of blood clots, and we wish we had known they can affect anyone, at any age, at any time. Sadly, Paul, Jr. was not one of the lucky ones. He did not survive his blood clot. He passed away on September 19,…