International
Diagnosed with Vascular Disease and Post-Thrombotic Disorder at 28: Hayley’s Story
In October 2024, I had a sore groin for three days. Scans showed nothing, and my GP said it was likely a muscle strain from work (I’m a crane driver). I was given pain relief and told to rest. On the fourth day, I woke up unable to walk. My leg was swollen and purple.…
I’m Living My Days to the Fullest: Elizabeth’s Story
In my twenties, I developed a pain in my calf that was extremely uncomfortable. I couldn’t put my foot on the ground to walk. My dad had DVTs a few years before and told me to go to the hospital. At the hospital, I was given an anticoagulant and sent for a scan the next…
I’m Hoping For a Better Outcome: Saru’s Story
I had my blood first clot at 26. I visited a doctor, but they couldn’t diagnose it, saying it would fade with time. After two months, it did fade. At 28, when I was newly married and planning a baby, I got red bumps on my calves. I tried lymphatic exercises for two months, but…
Don’t Accept a Diagnosis if Your Intuition Tells You Different: Jasmine’s Story
When I was 32 years old, I experienced terrible pain behind my knee for weeks. My doctor said it’s from standing, and I need physical therapy. I did that, but the pain persisted. Eventually, I went to a vascular surgeon who did vein stripping surgery. Seven days post-op, I felt sick, like the flu, but…
My Blood Clots Were Provoked by Travel and Pregnancy: Kayley’s Story
At 30 weeks pregnant, we took a road trip 10 hours away. We drove through the night, and I slept the entire drive. On our way back, I got an excruciatingly sharp calf pain and started crying. I called my midwife and she said it was from dehydration. A week went by. My leg turned…
Blood Clots are Invisible, But We Are Not: Maarib’s Story
I had my first pulmonary embolism in 2021 and my second PE along with deep vein thrombosis in 2025. The first time around, I experienced sudden chest tightness, shortness of breath, and coughing up blood. The second time, I had woken up to severe calf pain. Both times, my symptoms were constantly invalidated by doctors…
Never Ignore What Your Body Is Telling You: Annastasia’s Story
On May 6, 2024, I was admitted to the hospital to give birth to my little rainbow baby. I had planned a natural birth, but complications meant an emergency C-section. I was terrified and unprepared. Surgery went well, but hours later I developed a severe headache. My doctors said it could be spinal leakage. I…
I Live with Both APS and Factor V Leiden: Eloise’s Story
It was December 2020, and I was about four weeks pregnant. I spent a lot of time lounging on the sofa during the festive break. One day I noticed my arm began to feel tight and stiff, but I put it down to my lounging and holding my phone. Around a week passed and my…
This Experience Changed the Course of My Life: Libby’s Story
When I was 18, I was diagnosed with multiple bilateral pulmonary emboli. I was an active young adult, attending university and playing volleyball for my school. I woke up one night not being able to catch my breath and felt crazy amounts of pain in my ribs, upper right quadrant of my abdomen, and back.…
This Experience Transformed My Life: Nina’s Story
I was on a business trip to Scotland when I suddenly felt a sharp pain in my chest during pre-dinner drinks. I began to feel dizzy and had difficulty breathing. I thought it might be anxiety caused by dehydration and not having eaten that day. A taxi was arranged for me to return to my…
