Living With Thrombosis & Thrombophilia
Blood clots and genetic predispositions to clotting disorders can have
serious lifelong consequences for patients… and for their families and
friends. Click on the links below to read personal stories about coping with
these conditions.Share your story and help us build a network of support by clicking here.
Nicole De Jong experienced a cerebral venous thrombosis in 2007. Read Nicole's story including a one year anniversary update.
Lisa Boyd experienced a near fatal blood clot after delivering her second child. Like many people who experience blood clots, her medical providers did not recognize the symptoms until it was almost too late. Click here to read Lisa Boyd's story.
Kimberly Hennings of Colorado shares her and her sister’s story of pulmonary embolism. Kim developed multiple PE’s post-surgery in November 2007. She later found out she carries prothrombin G20210A genetic thrombophilia, as do all of her family members except her mother. Tragically, her sister Angela died of a PE at age 40 in July 2008. Angela had no other factors to attribute to developing a DVT in her right knee, which progressed quickly into a single PE, causing her death. Angela had not yet had thrombophilia testing since her insurance company denied coverage for the testing. When she developed breathing problems, they were attributed to severe allergies and asthma. Her diagnosis of PE was missed until it was too late. Read Kimberly's Story.
Lori Preston, Vice President of NATT, shares her story as a woman who first learned of her inherited clotting disorder during pregnancy. Read Lori's story.
Elizabeth Varga, one of NATT's Directors and Chair of the Education and Communication Committees, shares her story of learning that she has the factor V Leiden gene mutation. Read Elizabeth's story.
Laura Zain, from Livonia, Michigan shares her story, "A Journey with Kyle" about her son, age 17, who survived a blood clot to his brain. He was later found to have extremely elevated homocysteine levels.- Read Laura's story.
Janine Swiatkowski is a 41-year-old Sports Web Editor for ocregister.com from Santa Ana, CA who enjoys active outdoors pursuits like running, hiking, rollerblading and snowboarding. Read Janine's story.
Deirdre Callahan is an avid triathlete who lives in Mentor, OH. She became involved with "NATT Clotbuster" activities and is helping to fundraise for the organization. Here she shares why NATT means so much to her. Read Deirdre's story.
Jennifer Gray is a professional meteorologist with NBC 6 in Miami. Jennifer was fortunate to survive pulmonary emboli in two lungs. Her life was saved by insisting that something was wrong and the advice she was being given by medical professionals could not be correct. Her persistence in demanding medical care paid off. Read Jennifer's story.
David Henry discusses owning his coagulation therapy and taking control of his life through self testing. Read David's story.
Pam Parianna discusses how her life was saved from a deadly blood clot due to a story on Good Morning America. Read Pam's story.
Christa Larson tells her story as nurse / patient about her struggle with the medical system and double pulmonary emboli. Read Christa's Story.
Beverly Thao has had multiple blood clots beginning when she was only 18. The causes of her blood clotting episodes are still undetermined. Read Beverly's Story.
Even Athletes are afflicted by blood clots. Read Jeanne Krull's survival story.
Cedric Bills relates an inspiring story of a person in the peak of physical condition suddenly being stricken with a life threatening health issue. Click for Cedric’s account, in his own words, of his battle to regain normalcy.
Velton Wainwright Tudor’s Story - In October of 1993, when I was 47, my left leg started swelling from my hip to my toes and I started experiencing trouble breathing. My leg felt so tight, that I couldn’t bend my knee, so I contacted an orthopedic practice who then referred me to an internal medicine physician, Dr. D... Read the rest of Velton's story.
Terry Peterson remembers Jessica Earley. Read Jessica Earley's Story.
Lynn Levitt tells her story of in her own words about fighting for her life and how she survived a deadly blood clot. Read Lynn Levitt's story.
