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Patient Stories

Diagnosed with Vascular Disease and Post-Thrombotic Disorder at 28: Hayley’s Story

In October 2024, I had a sore groin for three days. Scans showed nothing, and my GP said it was likely a muscle strain from work (I’m a crane driver). I was given pain relief and told to rest. On the fourth day, I woke up unable to walk. My leg was swollen and purple.…

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Your Body Remembers How to Fight, and Your Spirit Knows How to Rise: Isabelle’s Story

Nine months ago, my world stopped. What started as a simple ankle fracture turned into a deep vein thrombosis (DVT) — a blood clot that changed everything. I went from running and training to being stuck in a boot, unable to walk, with my leg swollen and heavy. The pain was physical, but the fear…

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Know Your Family Medical History: Jesus’ Story

I’ve been in and out of the hospital throughout the year, starting in January, when I underwent surgery to treat a pulmonary embolism (PE) and deep vein thrombosis (DVT). I had been experiencing pain and swelling in my leg, but I didn’t have any symptoms of a pulmonary embolism, like chest pain or shortness of…

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The Scar Under My Collarbone Reminds Me of My Journey: Laura’s Story

In December 2019, my left arm started to feel different — heavy, swollen, and uncomfortable. I had been working out and thought I pulled something. I decided to go to urgent care on New Year’s Eve and was told I likely pulled a muscle. A week later, it was the same, so I contacted my…

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My Risk Factors Created a Perfect Storm: Amelia’s Story

On December 15, 2022, I sprained my ankle and was checked at urgent care for a possible break. I was told that I had no break, but that I should not put any weight on my ankle for five days. After that, I was able to put some weight on the ankle, but I started…

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I Was Incredibly Lucky—But Not Everyone Is: Hannah’s Story

I had a pulmonary embolism on September 10, 2025 at 24 years old. A couple weeks before, I noticed the left side of my back and neck were hurting. I thought I was just sore from Pilates so I took ibuprofen and didn’t think much about it. On September 5, I got engaged in Las…

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Blood Clots Can Happen to Anyone: Susan and Lauren’s Story

As told by Lauren, a nurse practitioner residing in Rochester, NY, and a Doctor of Nursing Practice student at Duke University School of Nursing. It was after nine in the evening when my phone rang. It was my best friend, calling a little later than usual. I had “Married at First Sight” on TV—my guilty…

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I’m Grateful to Be Alive, But the Health Anxiety is Very Real: Elizabeth’s Story

Two weeks after hip labral repair surgery, my thigh became very sore. I assumed it was from new exercises in physical therapy, but a few days later my calf became painful also. I was having a hard time getting around, so I called my insurance company’s 24/7 nurse hotline in the middle of the night.…

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I’m Not Taking My Life For Granted Anymore: Chelsea’s Story

I ran my first 5K in years the Sunday before all this happened. During the race, I injured my right knee. On Monday, I went to the doctor and was told to try rest, ice, compression, and elevation, and to use crutches for a few days. The first day on crutches wasn’t bad, but by…

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My History is a Sequence of Crises: Whitney’s Story

I’m 27, and my story isn’t about being young; it’s about blood that doesn’t flow. My history is a sequence of crises. Two weeks postpartum, IVF hormones and an emergency C-section created the perfect storm. I was struck by shortness of breath, chest pain, and neck pain. Rushed to the hospital, they found a pulmonary…

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