Patient Stories
Make Sure to Move Around After Surgery: Jake’s Story
I had abdominal surgery in July 2020 and had a difficult recovery. I could barely move. On Sunday, October 18, 2020, I woke and showered. I was home alone — my wife was visiting her brother. While climbing the stairs back to our bedroom, I became extremely short of breath. Despite that, I made my…
I Had a Blood Clot at 14: McKenna’s Story
When I was 14, I flew to my dad’s house in California to celebrate Christmas with him and my siblings. By the middle of the week, my left thigh was swollen, red, and hot and I couldn’t walk on it. I tried many things to get myself moving, but it hurt too much. When I…
No One Told Me What Was Going On: Cassandra’s Story
I am a 41-year- old woman. I was diagnosed with a massive pulmonary embolism (PE) and a large deep vein thrombosis (DVT), respectively, in my lung and left calf, in March of 2014. I had no idea what was going on. I was making my kids a snack and got so dizzy that it literally…
The Older I Get, the Scarier it Gets: Brenda’s Story
In 1983, I began experiencing pain in my side, shortness of breath and coughing up blood. At the ER, I was diagnosed with pleurisy, which is inflammation of the tissues that line the lungs and chest cavity. I was only 17 years old. Two weeks later, I began having pain in my left groin and…
We Lived in the Hospital for Six Months: Luca and Mousumi’s Story
My son Luca is 16 years old and has a rare clotting disorder called protein C deficiency. Doctors initially thought it was a bleeding disorder, but it turned out to be a clotting problem. He forms micro-clots that use up the clotting factors, which causes internal bleeding. It started just before Luca turned two years…
Nurses Say I’m a Miracle: Marcus’ Story
I am a 39-year-old Native American. I have had 23 pulmonary emboli (PE) and 31 incidents of deep vein thrombosis (DVT) starting at age 22, caused by the factor V Leiden mutation. I also have congenital protein C and S deficiencies. Nurses say I’m a miracle and call me a medical anomaly. Doctors ask…
Be Careful of What You Put Inside Your Body: Ioana’s Story
I was diagnosed with a massive bilateral pulmonary embolism (PE) on November 5, 2021, three weeks after my 23rd birthday. Everything started as a pain in my calf. The funny thing is that the pain began mid-workout, making me believe it was a pulled muscle. After a few days, the pain started to travel upwards…
The Symptoms May Be Subtle: Bill’s Story
Everything felt normal, but I was left gasping after walking up a hill carrying a bucket of water. Something was wrong. I was subtly winded after golfing and climbing stairs, but I paid no attention. I thought it could be allergies. The next day, walking up that same hill with the bucket, I was out…
I Had Clots in My Lungs the Size of Baseballs: Demetrius’ Story
I was first diagnosed with pulmonary emboli (PE), or blood clots in my lungs, on October 23, 2017. Doctors told me it was a miracle that I did not go into cardiac arrest and die because the clots in both lungs were the size of baseballs. I was rushed into emergency surgery to remove the…
Know the Risks of Estrogen-Based Birth Control: Melissa’s Story
After giving birth to my daughter by emergency c-section due to preeclampsia, I started to feel very ill. My right leg was throbbing and my chest hurt. I followed up with the doctor on this, and a quick scan showed blood clots in my leg (deep vein thrombosis) and my chest (pulmonary embolism). I was…
