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I’m Living My Days to the Fullest: Elizabeth’s Story

I’m Living My Days to the Fullest: Elizabeth’s Story

In my twenties, I developed a pain in my calf that was extremely uncomfortable. I couldn’t put my foot on the ground to walk. My dad had DVTs a few years before and told me to go to the hospital.

At the hospital, I was given an anticoagulant and sent for a scan the next day. They couldn’t find anything in my leg and told me it was a muscle strain. I went to a different hospital, and sure enough, I had DVT in the left leg.

The next one was in my popliteal vein behind the knee, which was even more uncomfortable and harder to find. Again, I was told it was just muscle strain, but I persisted and told them I knew what a blood clot felt like. It was treated with apixaban.

Some time after that, I was diagnosed with a blood clot in a vein close to the skin, a condition known as superficial thrombophlebitis.

The next blood clot nearly got me. In June 2025, at 33, I had a blood clot in the venous sinus system in my brain, known as cerebral venous sinus thrombosis (CVST), which caused a stroke.

I’d had a headache for six days and thought it was a migraine from stress. My husband took me to the emergency room because I was off balance and was slurring my words. I didn’t know what month or year it was. Now I’ve lost memories, I get tired very easily, and have a constant headache.

My father has factor V Leiden, and I’ve apparently tested negative for it. Four clots later, though, I’m not sure.

I’m living my days to the fullest now, gratefully.

Resources

CVST Patient Stories
Signs and Symptoms
Know Your Risk

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