It’s an Ongoing Battle to Stay Well and Manage This Life Condition: Callum’s Story

…hospital once they asked about my family history of clots. (My mother has factor V Leiden). I had two bilateral pulmonary emboli in my left and right lungs. I then…

Water Aerobics Keeps the Swelling Down: Gus’ Story

…experienced blood clots. Five years ago, my sister developed clots in her lungs (pulmonary emboli) and underwent testing for genetic clotting disorders. She was positive for factor V Leiden, prompting…

Honoring My Daughter’s Memory Through Advocacy: Amara and Megan’s Story

factor V Leiden. Unaware of Mara’s genetic predisposition, we had no reason to suspect a life-threatening risk would occur from taking the birth control pill. I was tested for factor

My Life Is Not the Same: Lisa’s Story

…a serious heart attack. A two-inch clot was stuck in my left ventricle. I was also diagnosed with heterozygous factor V Leiden, protein C and S deficiency, and polycythemia vera,…

Deep Vein Thrombosis (DVT) and Pulmonary Embolism Podcast Transcript

…sense of knowledge, because just having, for example, the …

Climbing to New Heights: Wes’ Story

…doctor. My primary care doctor referred me to a hematologist for blood tests, since it was an unprovoked blood clot. My tests came back positive for factor V Leiden with…

The Staff Was Unable to Restart His Heart: Joel’s Story

…because of the flu or a minor injury from weightlifting or pickup basketball. After his death, Joel tested positive for factor V Leiden, a genetic clotting disorder. All immediate family…

It Was The Beginning of My Transformation: Nicki’s Story

…made me feel seen. In terms of risk factors, I tested positive for factor V Leiden (heterozygous), and everyone in my family has come back positive factor v Leiden, too….

Blood Clot Survivors Can Do Anything: Ashley’s Story

…the results showed I had factor V Leiden, a blood clotting disorder. I was referred to a cardiologist in Boston and embarked on a six-month-long journey full of tests and…

I Was Told I Had a UTI: Jennifer’s Story

…also carries factor V Leiden and was immediately taken off birth control. Since that day, I’ve spent many hours before and after work in doctors’ offices undergoing tests. I’ve been…