I Was Told My Leg Might Need to be Amputated: Velton’s Story
…him about my condition. I had an appointment with him and he ordered blood work. The tests showed that I have a defective gene called factor V Leiden. He advised…
Blood Clot Resource Downloads
…Risk Awareness Bookmark Blood Clotting Risks – What you …
Knowledge of Blood Clot Risks and Symptoms Saved Me: Bella’s Story
…than we originally thought. They found out I have anemia, factor V Leiden, and May-Thurner Syndrome, which my mother also has. My medical team worked to decide what treatment would…
Join Caitlin’s Fight to Stop the Clot!
…leg, through my abdomen and stopped just below the main vein to …
NBCA Launches New Patient and Public Education “At-A-Glance” Series: “Blood Clots” is First Topic
…risk factors for blood clots in veins (deep vein …
Volunteer Spotlight: Megan and Doug Sloyer
About 12 years ago, Megan was diagnosed with a pulmonary embolism (PE) and two clotting disorders – factor V Leiden (FVL) and antiphospholipid syndrome (APS). Since then, she has experienced…
I Had Clots in Both Legs While Running Endurance Races: Ernie’s Story
…I had $1 for everyone who told me I should have died, I would probably have $15-$20. In terms of genetic factors, my brother has factor v Leiden, but I…
Trust Your Gut: Kaitlyn’s Story
In April 2013, I traveled to Japan to visit my brother, and then to California to visit my grandfather. When I got home from my two-week vacation, I woke up…
Continued Shortness of Breath Two Years After My PE: Shara’s Story
…for genetic clotting disorders. It turns out we are both positive for factor V Leiden (heterozygous), which contributed to my clots along with the birth control. I have learned that…
Don’t Stop Until There is an Answer: Becca’s Story
…an estrogen birth control pill a few months earlier. The doctors believed that could be the cause. I ended up testing positive for the heterozygous form of factor V Leiden…