Shared Decision-Making Guide for Thrombophilia Testing
…and other risk factors present. The inherited …
I Still Live With a 6-Inch Blood Clot: Cassandra’s Story
…I was told there was nothing else they could do and was discharged home to “wait and see.” A vascular surgeon tested me for factor V Leiden in 2009, which…
Every Fundraiser is a Lifesaver: Sarah Henley’s Candles Raise Blood Clot Awareness
…by the combination of increased estrogen from hormonal birth control and postpartum, as well as obesity. Blood tests later showed she also has factor V Leiden, a genetic mutation that…
The Doctor Didn’t Listen: Jason’s Story, As Told by His Mother
…a Protein S Deficiency. After Jason died, I had other testing done and found out I have Factor V Leiden. Now I have to take Coumadin for the rest of…
Health Professionals
…of these 12 valuable manuscripts: Comprehensive Clinical Guidance …
A Family Affair: Kathy’s Story
…clots. I was diagnosed with factor V Leiden, a genetic blood clotting disorder, back in the ’90s shortly after it was discovered. I managed to pass a copy of this…
I’m a Two-Time Survivor of Pulmonary Emboli: Heather’s Story
…I saw a hematologist who took 31 vials of blood. Results showed that I have the genetic clotting disorder factor V Leiden. I urged my two sisters to get tested…
Seeking A Second Opinion Saved My Life: Kathleen’s Story
…and my son’s life. My son is now four years old. In the months that followed, it was determined that I have the genetic clotting disorder factor V Leiden (FVL)….
This Experience Has Instilled a Deep Sense of Gratitude: Karla’s Story
…I had started in August to manage perimenopausal hot flashes. I have been tested for factor V Leiden because my mother and sister have it. I tested negative. This experience…
Two Blood Clots 20 Years Apart: Tim’s Story
…to look for underlying clotting disorders were done. It was discovered that I have factor V Leiden, post-thrombotic syndrome (PTS), and several occluded or blocked veins in my legs. Learning…