JAK2 mutation
Fight For Yourself: Sarah’s Story
After two long months of debilitating headaches and vision problems, I was finally diagnosed in July 2025 with a cerebral venous sinus thrombosis (CVST), a rare and dangerous clot in the veins that drain the brain, at 24 years old. My first ER trip was in May, when I showed up with stabbing head, neck,…
Hospitalized for a Month in a Different Country: Jessica’s Story
I had been experiencing lower back pain for a few weeks. I visited my primary doctor and my gynecologist because I thought I was suffering from perimenopause. I started hormone replacement therapy. I pushed for a follow-up with my primary for a CT scan. I had a pending trip to Liverpool to celebrate my husband’s…
